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Symptoms don't match level.

nowwhat44nnowwhat44 Posts: 47
I have a fusion a L5/S1 and everything was great for the last 4 years. then I started getting pain in my hip which may or may not be spine related. But the confusing part is I have pain in my heel on back of foot, top of foot and my little toe is numb. My last CT Myleogram said stenosis at L4/L5 and none or very mild at L5/S1. Are those symptoms not more consistent with S1, the area that is ok? Heel, pinky toe etc? So confused, I gotta ask doc at next appointment for sure.


  • I've been trying to figure out where my pains come from for almost 2 years now. The one thing I know for sure is that we are all wired a little differently. I've read many articles that say there can be cross over of the nerves as well. So while the dermatone map and other resources can be helpful I don't think they are definative.

    Another thing to consider is if you are searching too much. I know at different times I have stopped looking at the articles and maps and even reading too many posts because I was beginning to imagine things. For example when the doc says the MRI shows a certain nerve is affected I would read up on it. Then I focused too much on those issues and probably imagined more than I was really feeling. The mind is a very powerful thing...lol.

    When things don't make sense I've always gone back to keeping a pain log. It helps me to focus on me and that lets me communicate effectively with my doctors. Hope this helps.
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