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advice on where to get information

FenrysFFenrys Posts: 56
edited 06/11/2012 - 8:52 AM in Lower Back Pain
8> Hey folks,
Everyone on here has allways been helpful and so I have a question (for a change lol)

Before I proceed, it may be easier if I clarify that I am from the UK purely because the health system is different - not that I do not want ideas/suggestions from US cp suferers too ;-)

I would also like to clarify that I had a great surgeon and I am more than happy with his work!!!!

So....here goes....bascilly I need to find out what has actually happened to my spine over the years - I read everyones posts and you all seem so well informed. I don't know if its because Health care system is different in US or what but in a nice way I am envious and.......I want my information lol !! In UK we read any notes we want but we don't get copies for ourselves and so I have forgotten what I have been told - it has been 10 years (opiates for full time) is my only defence (snigger at self)

I know that I had a Discectomy (not micro) in 2000 and I was told I had degeneration in discs above and below. I have also (since surgery) had 3 different types of injections - 1 epidural, 1 course of x3 pairs of facet joints but I also had some into the muscles either side of the spine but I do not remember what they were called!!! Does anyone think they may know please???

I need to get this information together......the docs have it all on file but to be honest I don't want to ask them for ffear of it being taken the wrong way (I don't even know which way just wrong) :-? Also, I know the information is online to look up but I don't really know where to start :-?

Can anyone please shed any light??

Hope u are all well - thanks in anticipation - sarah


  • im not sure what your asking ?but degenerative disk di3.What is Degenerative Disc Disease?
    sease i have it and and age cause's it wear and tear where we get old.i think this link will answer your questions>>>What is Degenerative Disc Disease?
  • Hi Raymond,

    Yes I guess my op was a little confusing - guess I was more concerned that people know I am not complaining about the treatment I received. However not being that clear about what info I am after. I appologise for that.

    Thank you for the link - I will chase it up certainly.

    I just need to find out (have been looking online) the name/type of steroid injections I had into the muscles around the L5/S1 op site (much later) Its quite maddening as I remember the epidural injection info and the facet joint injection info but.......not the ones in the muscle ?? I remember the facet joint ones because they felt like having accupuncvture with a jack hammer lol!! I did not rush back for more!!! Lol

    Thanks again for your help - sarah
  • Go to the home page of the site and search on DDD or Degenerative Disc Disease. It is spelled out in detail. There is also a DDD section on the forum.

    In short it means it is wearing out and/or arthritic. As you get older stuff wears out. Some parts wear faster than others sometimes. Joints and dics being most common.
  • Could it be that you had trigger point injections? They're usually targeted at the muscles.

    If I were you in the UK, I'd have a notepad with me, look at the notes and write them down word for word. We're lucky in the US that we can get all the info we want and I often refer to my MRIs and CT scans as well as Operations Reports to know exactly what was diagnosed and how it was treated.

    That's my only idea, ruling out ESI and FJIs. Hope it helps.

  • Cath, brilliant!!! As soon as I saw the phrase Trigger ppoint injections it clicked (poor turn of phrase) its maddening isn't it when u just simply can't remember??? Lol that's really made a differance!!!

    Crikey I would jump up and dance if I didn't know how much it would blo#dy hurt lol

    Amazing (super hyperbole mode on) but its the little things that make me happy ;-)

    Thanks once more for that !! Ooops forgot - notepad yes good idea - I should have done years ago !!! Odd that I didn't really as I am a bit of a geeky "list" person ;_)Huge hugs x0x0 - sarah
  • If I was you I would first put pen to paper on all you can remember. Then that your not sure of get one note pad and take it to each doctors appointments and keep notes. After I leave any doctor appointment once i get in the car I write a brief summary of the appointment. Any time I need to access any information on my health I have it available. I keep my primary separate from any specialist.
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