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Is that it? Am I finished?

danielle1982ddanielle1982 Posts: 3
edited 06/11/2012 - 8:52 AM in New Member Introductions
Hello, newbie here. I'm 28 and have been in and out of doctors, hospital, mri's, x-ray's (you know the drill, lol)since I was 7. With constant pain, I was finally told yesterday, straight, for the first time, what is wrong. Dehydrated Disc's, Narrow Spinal Canal(I think this means stenosis), Bulging Disc's and Facet Joint Dissorder. I was told this by a Doctor I have only just regestired with, after he went through my results over the years. I'm so angry that no one ever told me any of this! I always thought I had a chance of everything being okay at some point, now, it seems not.
Is it normal to have all those things together and if so, is there still a normal way of life to be had?
I'm sorry if I sound moany, up until yesterday, I was kept a possitive smile through the pain, but now, I don't feel like it's worth the facade.


  • Want to welcome you to spine health. I am sorry that you need to be here. Sounds like you have been fighting this for a long time...since 7. Did the doctor give you any sort of action plan to help you with your pain?
    I know that it can be very frustrating with all we have to go through to try to find relief. My thought are with you and I hope that you are able to find some answers and relief for your pain.
    >:D< Karen
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • :H Boy what a shocker! At least you now know, and can come up with a long term game plan. You have had alot of pain for a long time. I sure hope that you can get your pain under control and get some relief!
    Hate pain, it makes me crazy! ~X(
  • hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. we are very glad you found us! i am sorry you have been suffering with pain for such a very long time with no relief. you don't say what type of plans he gave you for a pain schedule?? surgery?? conservative measures?? see another doctor?? please tell us alittle more about what is your prognosis and maybe we can give you better advice.. it is hard to say what is going to be "normal" until you find out how you are going to treat your problems.."normal" isn't really a good measure of much of anything as far as chronic pain goes.. good luck to you! Jenny :)
  • Thank you for the replies >:D< I don't have a plan with him at the moment, I wasn't in a great state of mind when he gave me the information. I will be making another appointment with him soon. However, he did say that surgery isn't an option, I aprantley have the onset of Oesteopharosis (prob spelt wrong, sorry) and my spine isn't strong enough to handle any surgery. My mobilty is restricted at as it is (especially the left side of hips and legs) and he said with time it will get worse.
  • hi danielle
    since 7 wow its sure is sick that all this time no one has helped you out...
    i'm with jenmy in that what did doc tell you about a plan of action??
    this place is a very good forum for support...altho none of us can dish out medical stuff....
    we can share our experiences and such...and sounds like you found a doc who knows how to read a film...

    how much pain are you in???
    for sure get 2nd and 3rd opinions if your not comfortable with this doctors plan to help you...
    please continue to read an search on here
    tc and keep posting
    always here for ya
    neck,bone spurs pain started 04, back issues and fusion l4,l5 06~hardware removed.
    good few yrs. 09 pain sharp, numbness feet,legs, diagnosed fibro, neurop. legs.lung issues.
    daily goal do good thing for someone.
  • Hello Mary, thank you for the kinds words xx
    This is the first doctor I have faith in, the information he has given me has been the result of all the specialist I have seen over the years. The problem was, none of them told me any of this. Wednesday was the first time I've ever none what was wrong. Even though I didn't like what I heard from him, atleast for once I know where I stand.
    I don't remember the last time I was without pain, maybe 10 years ago, it was less than now. I hurt so much some days, I think I'm going to go crazy. But I have a boyfriend that does anything he can to make things easier, a little love goes a long way lol.
    Thank you for the advice, I will keep going with this very caring site
  • dilaurodilauro ConnecticutPosts: 9,856
    Welcome to Spine-Health.

    Having your discomfort since you were 7 years old and not identifying what are some of the problems is way too long.

    You have to wonder if someone diagnosed your problems way back, how would you be today.

    But, its now and it dealing with reality. What has your doctor told you in terms of actions plans?

    - Medications
    - Physical Therapy
    - Surgery
    - ?

    You asked if these problems are normal. For many people they never see it, for so many people on this site and elsewhere it is very real. Without knowing really any details about your situation, its impossible to make an real intelligent comments.

    But based on what you did post, I would say you are far from Finished. There are so many treatments, both conservative and aggressive that have successfully treated people with conditions much more severe than yours.

    But we cant dwell on that. Now that you have found a doctor you are comfortable with, explore all of your options.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Hi Danielle,

    I'm sorry that you hurt so badly for so long. Sometimes I feel the same way: that it's just too hard and frustrating to get through the day, let alone keep up the facade. But we do somehow. We find ways. You are a survivor of a lifetime of wrong directions and agonizing pain. But you made it through, and I feel confident that with your strength, you will find a new "normal" that works for you. I still grieve/get mad over what I can't do any more, even though there are some wonderful things I *can*.

    I'd like to add to the good advice of our fellow spineys.

    Take someone with you to your next appointment. It helps to have another set of "unemotional" eyes and ears, esp one that can take notes while you listen!

    Write out your questions before you go and bring them with you. Don't leave until you're satisfied you have answers. Most docs are okay with your doing this. Good ones encourage it.

    Ask your pharmacist about your meds. Sometimes they are more up to date than your doc and most just LOOOOOVE to talk about Rx. I think it breaks up their day :-)

    If your insurance company has a nurse phone line, you can call and ask a nurse to explain things in detail. You can even get advice on what to ask the doctor on your next visit. I felt desperate when my med team said I needed fusion, so I called. The nurse was terrific, very supportive, common sense. She took the time and gave me a lot more to ask, and to think about. It's free service and really helped. Best, some are 24/7.

    Remember to breathe deeply and to be gentle with yourself. It takes time to adjust to something this big. Find the small pleasures in your life (I'm sitting in my recliner, no pressure on my poor spine, with sunlight streaming through the windows and birdsong all around. Ahhhh!)

    Best wishes,
  • sorry that you find yourself on a web site like our {even though its the best back pain site on the web.it rough being told that you have a knackered back .i was about 30 when i got the bad news and since then i have had two operations and countless pain clinic procedures like facet joint injection and epidurals and physio ect .i am now waiting for an ALIF fusion {not a very pleasant operation } have you had any operations ? and are you on any medication for your pain ? there are things that you can do to help your back pain .a good mattress preferably on an adjustable base is very helpful memory foam and sprung combination is about the best .also tempur make a pillow called a millenium queen its fantastic and will hold you neck in perfect alignment to your spine {i have one } also a recliner will help you to get comfy .a good TENS unit i think is vital for anyone with back pain .i will send you a private message with the manufacture so you can read about it .ice and heat can help too.are you in the uk .because if you are i know a very good consultant again i will send his name to you .i am sorry that you are in pain .and redheads feel pain more than others {apparently!} i am married to one take care and i hope that you are feeling a little better
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
  • New here to, what a great site to learn about stuff. As you already no! I think we learn alot by seeing others or reading about others. Well good to you and yours. again good luck!! :H
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