Hello all. I'm Lauren. I've been dealing with neck pain for almost 2 years this coming October. It's gotten so bad that I am on FMLA and can't sit in one position for more than a few hours if I push myself.
I needed to come online and find a place for some reassurance and help since all the places haven't been helping much. I'm at my wits end and I need permanent results now.
It started back in Fall 2009; thought I had mono and got some bloodwork done revealing that I had previously had Epstein-Barr Virus. I started experiencing numbness, tingling, loss of feeling in my fingers, wrists, hard time gripping things, etc. In Spring 2010, another said I was experiencing migraines and/or tension headaches and gave me a prescription for Nortriptyline. It worked b/c it put me to sleep, but besides that it didn't help at all. I continued experiencing the numbness, tingling, etc up through mid-June, then it went away through July, and came back again in August. I went to a hand doctor in Fall 2010 who referred me to have an EMG/NCS done to check for Carpel Tunnel. The results came back negative and I was confused.
In January 2011, our driveway was very slippery and icy from a recent storm, and I had fallen really hard on my rear end and lower back. Following that I started experiencing numbness and tingling in my left shoulder, elbows, legs, and sharp, stabbing lower back pain. I never went to a doctor to have that checked out b/c after about 3 weeks or so the pain died down and eventually went away. But at the end of March, the neck pain become so extremely excruciating and debilitating, that I couldn't sit at work anymore (I work at a call center typing at a computer 8 hrs/day). That's when I started on the FMLA. I've been working with my PCP who's referred me to multiple specialists -- neurology, neurosurgeon, chiropractor, and rheumotology. The had some bloodwork done for ANA/Rhematoid Factor and that was normal, as well as Vitamin D levels. My Vitamin D level is low (12) and apparently normal is 30-100. The rheumotologist said that I had all the trigger points for fibromyalgia, but that she didn't want to diagnose that until I had gotten my Vitamin D under control, and see if that wasn't the problem. Apparently Vitamin D levels and fibromyalgia symptoms are very similar.
I've been to the ER twice -- had MRI, C-spine X-ray, bone scan. MRI was normal. X-ray was done earlier and said I had curvature and narrowing of C7 and T1 disk space. I will get results of bone scan on July 6. I've been on so many medications -- Vicodin, Tramadol, Lyrica, Cymbalta, Gabapentin, Metaxalone, Ergocalciferol, Omeprazole, Prednisone, and Diclofenac. Currently I"m taking 2 Gabapentin per day, 1 Cymbalta per day, 1 Ergocalciferol per week, 1 Omeprazole per day, and 2 Diclofenac per day. The Gabapentin and Cymbalta seem to be helping with my fibromyalgia symptoms, but my neck pain is still excruciating.
I started going to the chiropractor a little less than two weeks ago. It seems to help immediately, but then neck pain comes back still excruciating and debilitating.
I have 3 weeks of FMLA left and nothing is helping. I don't know what I'm going to do if that runs out and I have to go back to work. I need permanent pain relief now. Please help!!!