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Its just a matter of time

dilaurodilauro ConnecticutPosts: 10,060
edited 06/11/2012 - 7:55 AM in Matters of the Heart
Most of you know that I had to have two complete shoulder replacements last year because of the advancing arthritis due to all the spinal surgeries I have had.

My shoulders are doing great, better than before and most of my therapists and even doctors are amazed about the range of motion I have.

Now, I am faced with a total hip replacement, once again due to advancing arthritis. I am a candidate for the surgery now, but we would like to 1) Take the conservative route and go through a series of steroid injections or 2) Wait until I am 65, why, because hip replacements are good for about 20 years.

For now, to me, its a quality of life issue. If I can hold out for a while, I will, but if the pain continues like it is now, I will just have the replacement done.

The hard thing to swallow, is knowing that because of the arthritis in my body, I know my left hip is shot. But the doctor also pointed out from the X-Rays, that my right hip is not that far behind. And to continue that thought, my knees will probably be next.

Arthritis! Sounded so simple when I was young, it only affected the older people. Boy was I so ever wrong. I am now reading more and more about arthritis, unfortunately, its telling me things I already now.

It may be too late for me, but for everyone out there there are ways to delay arthritis, slow down its progress. From diet control (specific foods and herbs) to exercise, you may be able to manage it for a while.

I wish I had access to a web site like Spine-Health or their sister Arthritis site. It may not have changed the eventual outcome, but I could have been more pro-active about the disease.

Meanwhile, as all of you know, this will not keep me down. Nothing will. I will continue to move ahead, with every positive notion and attitude that I know about.

Nothing is going to beat me down, I am strong enough to fight everything and anything when it gets into me way.

I am very lucky to be on this site. Sure, I am the System Administrator and at times I can come down on people for doing something wrong. But I am also a patient, a chronic pain patient for a very long time. I only wished there was a site like this 20 years ago. But, I am still very grateful for what is here now and especially for all of you out there who have given me encouragement and best wishes.

Without all of you, life would be so much harder.
Ron DiLauro Veritas-Health Forums Manager
I am not a medical professional. I comment on personal experiences
You can email me at: rdilauro@veritashealth.com
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Comments

  • sorry to hear your in for more surgery...
    and i do wish i had found this site when i went thru my first back pain days...the support this site provides is amazing and the friendships..
    I really didn't know much about arthritis till i read a bit due to meeting others on here with it.
    Your a fighter for sure and inspiring all the work you put into this site and in to the chronic pain fight.
    It's hard to deal with pain and get thru a day let alone be there as you are for others....that you and many others have taught me. Often I have left and not posted but if I can help out or support one person as so many have done for me its worth staying around for.
    I will not give up on trying to meet some of these great ppl on sh.
    and oh I have met one..finally (i shall let you guess whom it is i met in person last wkend)
    I wish ya the best
    and keep pushing thru and I hope you get is done with and not suffer to long

    thanks
    mary
    neck,bone spurs pain started 04, back issues and fusion l4,l5 06~hardware removed.
    good few yrs. 09 pain sharp, numbness feet,legs, diagnosed fibro, neurop. legs.lung issues.
    daily goal do good thing for someone.
  • dilaurodilauro ConnecticutPosts: 10,060
    your attitude tells it all.
    Thank you for your kind words.
    We all try to help others on SH, its an amazing community. Some day I hope to meet another member face to face, but until that happens, I am comfortable in knowing that I will do what I can to help others and others will do the same for me and other members.

    Except for the fact that we are all suffering from some pain, the overall concept of our connections is something to be very proud of
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Ron,

    I have to agree, when I first got injured while this site was here, I of course always assumed you go to the doctor let them fix it and move on. Well how wrong and naive I was. While I do know that many others do have that happen for them, it just didn't work out that way for myself. I just never thought of using the internet to research what surgery was being done and what it meant. I remember waking up and thinking why is there a bandage on my neck, well da. I to am in the process of learning about arthritis and the things you can do to control it. While I don't really have it to the extent you do, I would like to put off knee replacements till I am in my 50's. The conservative route is the way to try, if you ask me, as obviously surgery comes with risk. But also learning what I can do so my body is not filled with it. But as I approach the menopause years and loose estrogen, now is the time to be extra cautious and diet is a major player here, for me and many women. Oh wait your a guy, well you do wear high heels occasionally? Which really you need to let those go now, as they are brutally on the knees, hips and spine.

    The one thing your right before your the system administrator, your a chronic pain patient. Like many here you came here for support, information and to be involved with other patients like yourself. In the process you find that helping others beginning this journey, helps yourself as well, knowing you have valuable information for others to use. As the internet gets more and more popular, the audience gets broader and people look to sites like this to find information to help them through. Kind of a cool thing. Wished I had joined before I did, kind of thing.

    You will get through this and like I always say hopefully when were 70 and everyone else is getting stuff fixed will all be better and fixed up and living life to the fullest.
  • Ron,

    So glad to see your shoulders are doing so well. Bummer about the hips, but from what you've posted, the recovery (still floors me) is easier. Your a strong man, so I have full faith you will give the same positive and determined attitude in healing when the surgery is eventually done.

    As I've posted in the past, I didn't know about this site for my first 2 fusions, and after finding it, things have changed for the good on the support, friends, knowledge side for me.

    Ditto for internet hunting (like Tamtam), I didn't do too much research for those surgeries as I really didn't understand a lot of the terms, terms such that I could put together a good informative search question. That of course do to the education we earn on this spiney trail we walk!

    So, I too am very glad this site and others for other support needed conditions are out there now. :)

    Brenda
    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Ron, You are such a Hero to so many people! I can`t thank you enough. No matter how you feel,or what you`re facing, you along with all the rest of the team inspire me beyond words!!! I hate that you are facing more surgeries. I know you`ll do great. With your grit,strength,and great attitude, I know you`ll get through everything! I will keep you in my prayers. This wonderful site,has been a blessing for me. I found it by accident. Probably, like so many others, searching for precious information! All I can say is WOW,I hit a jackpot, when I found Spine-Health!!! Not only information,kindness,compassion,fellowship,friendship,not to mention all the encouragement. I really can`t put into words how much I appreciate the hard work that has gone into making Spine-Health, the wonderful site it is. Ron, thank you so much. I will keep you in my prayers. Gentle hugs, Brenda
  • Ron, it's awful that you have to get the hip and possibly knee replacements. Geez, you're going to be the Six Million Dollar Man by the time they're through with you!

    Being much (much) older than you, my grandmother went through a total hip replacement a few years back. With therapy, she was doing quite well with walking after! But, sadly, she fell and ended up having to have them redone. While she can walk a little now, she mostly is in her wheelchair (mind you she's also 90, has also had a triple by-pass, and has diabetes). But after the first hip replacements, she was doing very well. I'm sure at your age and being in better health, you will do fabulously. Everyone I know who has had knee replacements is so glad that they have had that done, too.

    I know you will do well, you are strong and will bounce back quickly! But I do hope that the conservative measures will delay it a long time yet to come. You've been through enough the past couple of years!
    Kelly
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
  • dilaurodilauro ConnecticutPosts: 10,060
    It gets to be a bit frustrating. Especially after last year when I had both shoulders complete;y replaced.

    When I was going on for the first shoulder replacement, I knew the net one would follow.

    My bone scans did show areas of Arthritis in my shoulders and hips But I started to deny it in so ways.

    I knew that the arthritis was just running rampid through out my body. And some day, every joint would need to be replaced. I just wasn't ready for how fast things deteriorated and that I needed the surgery. Today, my shoulders are 1000 times better than they were before. The recovery was very had, but I knew what was at stake

    I can slip back feeling pretty good, not physically, but emotionally. I have all of you to help me out and give me encouragement and above everything, I have a wife that has stood by my side for over 35 years, sacrificing things she may want to do for me.

    I am fine and going to be fine... Thats just the plain and simple outlook.
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • I wish there was a like button, I would have pressed it for your last statement Ron:
    I am fine and going to be fine... Thats just the plain and simple outlook.
    Kelly
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
  • We're here to support you through this and you're right you will be fine. I'm sad you have yet another surgery to go through but you will be better than having all the pain so bad you can't walk is the time to get it. Don't cross your legs ever may as well get used to that now you'll only be able to cross your ankles.

    This is a great place for support and information and you're right you need support as much as any of us. It seems arthritis hit me at 47 all over the same as my back and gaining this extra weight sure doesn't help the joints.

    Six million dollar Papa Ron we're here for you. Hugs Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • dilaurodilauro ConnecticutPosts: 10,060
    Thanks for your kind words. Its people like yourself that really drives me to be here and try to help.

    You are the type of person that will post about your own specific problem, but you also spend so much time helping others.

    That trait is what make this site better than any other medical site.

    We care about each other!
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • With all that you have going on, you are great with getting and GIVING support to many. You do this board/site justice in my mind. *HUGZ* <-- special one for you!!! (G)

    Brenda
    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • dilaurodilauro ConnecticutPosts: 10,060
    I can understand and feel the *HUGZ* you gave me.

    Thank you, I appreciate it.
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Ron,

    Well, we [I for one] DO appreciate what you do on here. That right there earns a "Brenda HUG" :) I'm not thrilled with what is in my surgical future, but unlike my past nerve and spine surgeries, I have this family!!! YOU are a big part of the family. Thanks again!!

    And... Man-o-man-o does that take the edge off the "OH GOD" stress .... :---) Bigtime!

    Brenda
    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • You truly are an inspiration to others. With all that you are going through and have gone through, you are always here for everyone.

    You look at the positives in life including recovery, and I am sure that this has served you well recovering from your shoulder surgeries, as it will in future surgeries.

    My cousin just had a hip replacement a few months ago, and it has been such an incredible transformation for him. The pain and limp from his past went away almost immediately after surgery. He has made a complete recovery.

    In the same way that you are always here for all of us, so too shall we be there for you!

    >:D< Karen
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • dilaurodilauro ConnecticutPosts: 10,060
    All of you make me wanted to do more and more. That alone is extremely powerful motivation. Thanks.

    Now, on the home site. I had a Steroid Hip injection on 08/08. As usual, it can take from 3 days up to 3 weeks before you see the results.

    I went back into the therapeutic pool and did my walking and stretching. I was hoping for the better, but unfortunately, I am heading the other way.

    The small bit of exercising I did, really set me back. I talked to the Pain Mgt Specialist that did the injection and he told me to give it a few more weeks, but not to do any exercising.

    Right now, I am finding it difficult to put any weight on my left leg. What used to be using a cane for support and getting up, I am needing the cane just to move around

    I sure am hoping that but not exercising, using more ice and NSAIDS, I will be able to return to where I was before all this started.


    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Maybe like I've found...been getting worse. It is the body saying do something to make this better, or stop the progression?

    My new surgeon warned me tonight in email about being in a car, never mind driving one and then bumped my surgery from 6+ months to 6+ weeks! Maybe your body is trying to move surgery up?

    I'm sorry PT and exercise is hurting more. I just started (not the PT part) going through or better yet experiencing that, and it bites. I hope you have answers soon. As you and I have talked, the answers might not be great, but they are answers so we know what is going on, and what we need to go through to make life better. *HUG*

    Brenda
    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.


  • Your positive mental attitude is an inspiration to the rest of us.

    Thank you for all you do for this site and for helping to make it the best place to come for information and support. :-)

    I am pleased to hear how much better your shoulders are now after your surgeries. Hopefully, in the future, you will be telling us how much better your hips are.

    Life certainly deals some difficult cards, but we will play with what we are dealt. Have lots of fun playing Ron! You are a winner! :D

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