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born with extra bone off my pelvis?

lollycbllollycb Posts: 8
edited 06/11/2012 - 8:56 AM in Back Surgery and Neck Surgery
has anyone else ever heard of this or know anywhere i can get more info?.i have an extra bone in my back that is quite long(or so it looked on the xrays) and extends downwards from my pelvis in my back obove my left bum cheek.one docter said it was quite common but i have yet to come across anything like it doing search after search and i dont even know the name for it. i've been suffering for over half my life now from roughly 15yrs of age with my knee/leg giving way n having a kind of fit with it progressivly getting worse over the years.i am now 31 and its now the entire left hand side of my body that fits,EVEN if i go swimming,with the more rescent change being a strange sensation through my left arm and hand,a kind of numbness and independant twitching spasms of the outer fingers on the same side...Just want to add this bone was only discovered when i was 30,despite spending 15yrs seeking help and answers and it was only after being told i must be majorly depressed and its all in my head when i specifically requested that someone check my back and this is what was found.i dont know where to turn,i have chronic pain every day of my life,neck,shoulders,upper back,lower back,hips and have also developed other problems now with my left foot along with hammer toes from scrunching my foot to walk,aswell as fallen arches in both feet,oh and my right shoulder has an impairment that causes an impindgement(whatever that is).i have 4 young boys to keep up with and feel so frustrated and tired out! any advise welcome,please.
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Comments

  • Hi lollycb

    I have no knowledge of your extra bone-- sure sounds like you have been on a massive roller coaster trying to get help. Have you searched the forums here with the name of your bone problem? is there a given name for it?
    When i joined this site, I searched out my particular problems, and read all I could on them. then, I moved to chronic pain, depression, surgery options, etc. I dont' think I have ever sat and read so much on a computer in my life! I love it.. though, challenging to sit. I need a lap top! lol.
    I wish you the most positive search-- and don't let the frustrations beat you down. i made a superb CD of great tunes I am inspired by-- 'chick tunes" my brother calls them.. but, they work for me! Get me outta my funk-- sometimes:)0--so I can concentrate on something positive-- not being racked with frustrations.
    Keep in touch!
  • hiya,
    tis nice to hear a friendly and supportive voice..i try to talk to the husband,but i think hes never too sure of what to say or what i need to hear...(like most men i think,lol)

    one of the problems is that i've no idea of the term/name for this accept for somekind of anomaly/abnormality..see,i have adhd which affects getting prepared,organized,thinking,forgetting...etc.so its not until after seeing the consultant that i even thought of all the questions i wanted to ask,such as the name for it?.possible treatment options?.how the nerves are affected or damage that may have developed...it was very brief,very un-informative and to be honest i felt like i was taking up too much of there time,if you know what i mean and didnt seem too interested in what i had to say,or what i was going through..basically they didnt seem to care..i will keep going in my search,even if its just for surgeons...and this time i think i might try a few out first until i feel i've found the right one for me.
    will let you know how things progress. :)
  • Just so you don't think you are alone . . . . I was amazed to see anyone else with this "issue". I, too, have an "extra" bone on my pelvic bone. Mine is on the top part and is fused to three or four vertebrae, causing my pelvis to be tilted. I am in constant pain, and it is getting worse as I age. I have never even considered surgery, and have often wondered the same things as you . . . is there a name for this, and has anyone else ever had this problem. I Googled "extra bone on pelvis" and found this forum, and was amazed to see that you only posted a month ago! I hope you return and keep me posted, as I am very curious to find out any information about this condition. Thanks for posting!
  • I am 37 yrs old and I have been dealing with back pain for 15 years. Making a very long story short..... I was told by an orthopedic that I had "thin discs that tend to tear" this was after a discogram ( can you say painful?!) out of work due to pain from 2000-2003. In 2007 after a twisting motion I had a herniation the size of a large grape pressing on a nerve and was in the hospital for 5 days. A neuro saw me in the hospital and we went ahead and did the microdiscetomy L4-L5 and I felt great! Pain was not 100% gone but manageable. Jump to Sept 2011, had foot surgery on both feet at the same time ( I don't suggest doing both feet at once, too difficult!) I herniated L4 again, major back spasms and looking at surg again. After the doc I worked for suggested I see her chiro. I went the next day, he did a few X-rays.... He found the star bone coming off of my left side pelvic bone. He said this is causing my pelvis to be in a locked position, pelvis should "rock" with you leg movements, mine can't thus causing back, muscle spasms and herniation. I also have my bottom vert fused, never had a fusion, I was born this way. This is the first doc in 15 yrs that tried to figure out WHY I was having pain and didn't want to throw narcotics at me! I still had to have surg (this morning as a matter of fact!) to clean up the herniated disc but I feel great!
    Also, I have had two vaginal births and was told I had a tilted pelvis also.

    So I thought I was the only one with this xtra none just like you did but I guess not! I wish you luck in all your back issues. I will share any more info I get!

    Laurie
  • Hi,

    I am a 36 year old man and today I was surprised to see two pieces of bones coming off the sides of my hip in an x-ray I had taken to diagnose a click in my left hip joint.

    The doctor believes those bones do no harms, unless some pinches that I have experienced at some forms of sitting uncomfortably.

    Hope this helps
    Rez
  • I have the same thing and I was born with it too. It didn't start to affect me (and i wasn't even aware of it) until 2013. I call it my "Bone Bridge", but it is called Sacralization of the L5 vertebra (on one side). This causes limited mobility and a little circle/hole through which your nerves can get pulled and pinched. My latest issues are when a nerve gets pinched/pulled and I pull the muscles in my back surrounding the bone bridge. I get "stuck" in certain positions, especially when sitting, and it takes me hours to switch positions to be comfortable. Thankfully, trips to the chiropractor help keep my back healthy and lessens my issues. I am currently working at the gym more to strengthen those muscles in my back. I hope you have received help in the past few years! If not, I am here to talk! :)
  • SavageSSavage United StatesPosts: 3,709
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