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Feeling down and anxiety over surgery etc..

SplendagrrlSSplendagrrl Posts: 108
edited 06/11/2012 - 7:56 AM in Depression and Coping
Just wanted to say I am feeling down in the dumps big time. After 4 years of battling chronic back pain, I was finally set to have surgery Oct. 17 th when my insurance denied my fusion. Everything was set and I was finally having some hope, my husband took off work, I had after care set up, my relatives booked rooms near the hospital etc.. And I finally was getting used to the idea that there was finally surgery and maybe some relief. Now I have to go through this big appeal process and I don't know what is going to happen. My surgeon is going to talk to them tomorrow. I feel like after all this I am back to square one, and my life is on hold and I am living in limbo.before it's mentioned I am on Cymbalta for severe nerve pain in both legs which also has helped with depression. I am just so frustrated. My doctor is going to appeal but don't know if I should call them also or what. I can't exercise because it causes pain, can't work, my kids are grown and my life is feeling really useless at this point. I can't even barely go shopping. I went to the store Sunday and was looking around for about 20 minutes and the pain was so severe in my back, then both legs started shocks down to my knees and one leg buckled. I had to immediately go to the car and my daughter had to check out for me. What are these insurance companies crazy or what?. Am I just supposed to live without being able to barely function for the rest of my life just taking stronger and stronger pain pills, while the nerves in my legs get so bad that I cannot walk at all?..Sorry just had to vent and talk to someone because no one understands what I am going through! If you read this thanks for listening!,
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Comments

  • ***Hugs **** for Splenda >:D<

    I know exactly what you are going through. Here you are in pain, stressed out about the surgery, recovery, life.... All of your big dreams might actually happen when the surgery starts working for you ((( see the joy of posituve thinking ;) )))

    You have to know the surgery will happen eventually. Keep getting prepared the date will happem before you know it. Stay posituve :D Keep busy preparing.

    I would ensure you have fugured out the bed (I have a 4in memory foam topper). I would get satin or polyster silk or the real Silk bedding (it makes getting in an out a much better when you can slide. If you can only afford one sheet get an ovrsized flat silk sheet - you can pull a person across the bed with the flat silky sheet..... OR you can get silky pajamas then you will be able to slide into bed.

    Get long handle grabber, or 2 (one upstairs and one down stairs). Plan some very simple meals. I made about 6 casseroles and froze them. All hubby did was thaw then out and bake.

    Stock up on easy foods and fun things one can do when they are heavily medicated....
    *Chickrn Noodle Soup (grilled Chreeze)
    *spagetti and canned sauce
    SIMPLE STUFF INCASE YOU HAVE TO MAKE THE FOOD.
  • Hey Splenda.

    I think I'd let the doctor handle it at this point. During my last surgery, one of my surgeon's assistants was his PA. My insurance denied paying for him because technically, he's not a surgeon, so I got a bill for $18,000. I kind of freaked (imagine that) so I talked with the surgeon's office and they said it happens all the time, not to worry about it and they'd take care of it. They did and all is well.

    Usually, the doctors have to convince the doctors on the insurance's payroll that surgery is necessary and they have to do their "doctor-speak" to make them understand.

    So try not to worry, but I'd make sure to call my surgeon and see keep up on the situation. Keep getting prepared, it's bound to happen, it's just a matter of red tape. That danged red tape!

    Take care,
    Cathie
  • Denial of fusion surgery is becoming more and more common. Insurance companies hope that you will give up and just leave them alone. I'm sure this doesn't happen often because by the time you make a huge decision to have lumbar fusion, you're not about to change your mind because of one denial.

    Your surgeons office deals with this often and will probably have this straightened out before long, and then you can get on with healing and getting rid of the pain.

    Wishing you the best.
    Gary
  • Insurance does this all the time. Just dont worry it will get resolved. Its not worth geting upset about it. They might even get it worked out and keep the same surgery date if the dr sends them the right paper work to push it through.

    So maybe you dont have to cancel anything and just keep the date for now maybe?

    Good luck
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • My surgery is set for the 11th of October...so (from what I heard today), that "approval crap" is done... I actually yeah... cried reading your post. I am Federal, so my insurance is more flexible is a good term? I see your situation (crying damn it.....sniff), it hurts.

    Surgery its self sucks...but waiting on insurance to "decide" if *we* NEED surgery makes me physically SICK!!!! Again, I don't know if mine is approved...but its' been on the list for 4 weeks prior, hospital did their prereg...I guess it went through? I am a bit different though (priority) thanks to instability....

    Woman., please feel my deep and hard HUGZ, as I (again) am actually in tears responding here...EDITED
    ...so sucky.... sniff. *HUGZ*

    Brenda (still tearing as I type this.......) Hopefully as you read this... you moved to the "approved" category!!!

    Brenda

    Profanity not allowed. Removed by authority member, Cath111, 10/1/11.
    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Hi Ms Splenda, I'm so sorry you are having to go through this nightmare. I can't help but have tears in my eyes. It is so unfair insurance has started practicing medicine. I can't believe it. We pay high premiums and they have the nerve to deny a surgery!!! I spent my whole summer on it. I have now seen 3 surgeons( 2 NS,1 OS) and 2 PM's, all saying the same thing,"I need a ALIF" not, I want!!! I'm suppost to have this Oct.17.
    I can't even mentally prepare myself, they can still deny it. Hopefully, your surgeons peer to peer goes well, and you don't have to go thru appeals. I'm praying for you.
    Take care and good luck, Brenda C.
  • Hi Ms Splenda, I'm so sorry you are having to go through this nightmare. I can't help but have tears in my eyes. It is so unfair insurance has started practicing medicine. I can't believe it. We pay high premiums and they have the nerve to deny a surgery!!! I spent my whole summer on it. I have now seen 3 surgeons( 2 NS,1 OS) and 2 PM's, all saying the same thing,"I need a ALIF" not, I want!!! I'm suppost to have this Oct.17.
    I can't even mentally prepare myself, they can still deny it. Hopefully, your surgeons peer to peer goes well, and you don't have to go thru appeals. I'm praying for you.
    Take care and good luck, Brenda C.
  • I want to thank everyone who took the time to make me feel better and replying in such heartfelt ways! I just love this group! Anyway I have great news, in fact I cannot believe it! My surgeon had a peer review with the insurance spine specialist today and they immediately overturned the ruling and approved my double spine fusion! I do not even have to go through the appeal process which could have taken months to years from what I read on the Internet. Of course they had not read all the notes from my surgeon properly about my neuropathy in the legs and everything else going on. So it was immediately approved thank goodness!! Ok now I am scared again! Lol I have to go through this mental process all over again. Anyway I do not have a new date yet, the surgeon has to wait a few days to get the official paperwork from the insurance then I will be scheduled for the earliest date available. I should know by the end of the week. :) is it possible to feel excitement and utter dread at the same time??? My stomach is now in knots!
  • Brenda Thanks so much for your prayers!! I will be praying as well for you and your surgery and that it is not denied. Looks like we will be in and recovering about the same time so we can support each other in recovery!!
  • Splendagrrl,

    Excellent news, excellent indeed!! "Excitement and dread" at the same time. Yeah I can see both emotions running. Oct. 17th is still far enough away, so unless the OR slot got taken, you still might find they can do your surgery on the 17th?

    It would be great to find out they held your date 'assuming' the insurance issue would get fixed. Hopefully you will know more about the date by the end of the week? I should be coming out of the hospital about the time you're going in! :)

    Congrats woman!!! *HUGZ*

    Brenda
    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • I just read your last post! I'm so happy for you!!! Now maybe you can mentally get yourself prepared!!! I just know this will be the right surgery to get your life back. Praise the Lord!!! Maybe, you can still have that surgery Oct,17!!! Hugs, Brenda
  • I just got my surgery date confirmed this morning. My slot was still open so I am having surgery on Oct. 17th. Wow suddenly that's soon!
  • Good to hear your surgery will go ahead as scheduled. I hope you get the relief you need from surgery. Praying it will be a success. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Awesome Splenda!!! They still had the slot open, excellent news! I'm starting to work on my "to do" list before surgery. I know I won't get everything done I want to, but at least get a stab at it. (G) 13 days and a wake up!

    Brenda
    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • I'm so glad that your surgeon was able to get it all sorted out for you and that your original date was still open. Good luck with your surgery, and speedy recovery to you!! Try not to worry to much in the meantime, take it easy and make sure that you review the list in the FAQ section and have everything set up that you need prior to the big day!
    Kelly
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
  • I'm so happy to hear it got worked out so quickly and you still have the same date, although as always, not happy to hear that you have to have surgery.

    But I hope it gives you the relief you need. Yes, it's very possible to be excited and have butterflies all at the same time - I expect many of us have felt the same way.

    Congrats on getting thing straightened out and I wish you the very best on your surgery. Now, go buy some new underwear - a spiney surgery rule - you must have new underwear when you get home. LOL

    Take care and as always, please keep us posted.

    Cathie
  • That's funny because before I even read this I went out and bought new undies...lol
  • Thanks Charry and everyone for your replies, advice, tips and well wishes!
  • Ms. Splenda...

    Just checking in...hoping you are feeling better and such. :) *HUGZ*

    Brenda
    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Hi Brenda,

    Thanks for checking with me :) How sweet of you. Yes I am feeling better that my surgery is back on and approved! Especially since this last week my pain is getting worse especially at night. Now at least I have some hope. But I am counting down now and of course having second thoughts, getting scared and wondering if I am doing the right thing. I know I will have surgery now no matter what, I just can't help feeling this way. I have one of my first pre-op appointments today. I have three total one with my regular doc, one with my orthopedic surgeon, and one with the vascular surgeon. Eeeeeekkkkkk! Have a good day and Hugz back at ya!
  • Howdy Ms. Splenda!! :)

    Again, so happy all the insurance mess got cleared up, and too that your original date stayed intact. :)

    Oddly I don't have jitters yet, and mine is a week from today. I guess in part its because I am at more risk NOT having the surgery than having it - making it a no brainer for my little brain! (G) Not looking forward to post op, but I have a small idea how that mess is going to feel thanks to some on here who have gone through similar. Whew!!

    I went online and got a lot of my pre to post surgery shopping list done. My last fusions I had some ROM, this one I don't think there will be much, so got support items (bathroom, shower, support etc.) I'm actually doing a LOT more planning for recovery this go around than I did for my last surgeries - odd huh?

    Have you finished your "at home prep" checklist for what you feel you will need and want? Might help distract your mind a bit and calm you. It will come together, of that I am pretty sure Ms. Splenda. *HUGZ*

    Brenda ☺
    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
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