Hi all, I am so thankful I found this forum. I cannot believe the amount of information I am seeing here. I guess my post is part rant, part questioning, part looking for support. A little background: in 2001 I woke up one morning and couldn't feel my left arm. I had 3 small children, 2 of them still in diapers, figured it was just a pinched nerve and went about my life. One month after that I began to have the most unbelievably bad pain in my arm, it actually rivaled childbirth, lol. So they do an MRI, turns out I have 3 herniated discs, one of them pressing against my spinal cord. So fusion of C5-C7 with plate and screws. Instant relief, life is good again.
Fast forward 1.5 years and I am in a minor car accident, rear ended. I am having some neck pain so I get x-rays, they discover the screws in my plate are coming out. They don't think it was the accident, they have just been working themselves out, so surgery #2 occurs.
Now here we are 8 years later and I am having all sorts of problems with my neck, I go in for an MRI and the nurse calls me and says the disc above my fusion is herniated and pressing into my spinal cord and I need surgery. I am just sitting here in shock. The thing that is really getting me is I haven't even spoken with this Dr. It's his nurse that is giving me all the information. Maybe it is my imagination, but I feel like any questions I am asking are just annoying to them. I am not sleeping at night because I don't understand why am I not seeing the Dr to get explanations. I want to see my MRI and X-Ray results, is that asking too much? I can feel something when I swallow and I am afraid after my last episode the screws are coming out again and the nurse tells me the hardware looks good and it's probably "a wad of scar tissue". The whole thing just feels surreal. So I did send a message to the office saying I want to meet with this guy as I have questions. Meanwhile, the pain in my neck is getting worse and my right thumb is numb so it's really moving right along here. I am not sure how long I have and I feel like i am just waiting to blow so to speak. And I am scheduled for surgery Nov 16. Ugh, I just feel like this is all a giant mess and I don't know if I am making too much out of this, or if what is really going on is I am so upset over having to go through all this again. I hate these surgeries and cannot believe this will be the third time.