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Mystery Disease Help!!!

BrokebackBobBBrokebackBob Posts: 26
edited 06/11/2012 - 8:59 AM in Spinal Stenosis
I had 3 ACDF June 28, 2011..developed c5 palsy that is just now beginning to clear up. Since surgery I have had 7 or 8 episodes of total body fatigue that last 2 0r 3 days each. I lose my appetite and I have zero energy barely able to get out of bed. No muscle soreness or other symptoms. Several doctor visits and blood work showed low Vit D and 50,000 units weekly has raised level and we thought episodes were over but I had one two weeks ago, 7 weeks after the last one, and that was the worse episode yet. I have severe spinal stenosis in lumbar and had surgery scheduled for Jan 24, 2012??? But now with recurring episodes of fatigue doc wants more tests before surgery...cardiac, thyroid, EMG, EEG I dont want surgery with this mystery ailment hanging on. Any spine people had such fatigue??? I was hoping lower surgery would go as well as neck and I could get back to regular life or close to it...


  • They dont think the fatigue is from the pain? With severe pain i thought fatigue is prety normal,

    When my pain gets very intense it drains the life out of you and raises blood pressure and csuses fatigue,

    Is that what you refering to?
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • Well, I'm with Alex - pain and surgeries can definitely cause us to be more tired that most. I've found that after my two surgeries, I'm simply not the person I was before.

    I used to come home from work, make dinner, clean the kitchen, feed the dogs and play with them, watch TV, get ready for the next day then go to bed. Next day: up fresh as a daisy. Now, getting up for work is the most difficult thing in the world. My hubby is pretty sick of me apologizing for not being who I used to be, with the house dirty, the kitchen not always clean, etc.

    Pain (and I understand lumbar stenosis pain) can be very debilitating and that pain can make you very lethargic and tired.

    If they rule out all else, it really just could be spiney exhaustion - this spine stuff really takes its toll on our bodies.

    I also want to mention that lumbar surgery is going to be more difficult that your ACDF - it will most likely take twice the time, if not more, to recover from than cervical surgery. It's a bear and you probably won't even feel close to normal for six months or so.

    Anyway, I hope they find the reason for your fatigue, but also wonder if it's just a normal thing going on due to being a spine patient.

    Take care and please keep us posted.
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