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Introducing myself

suzygirlssuzygirl Posts: 2
edited 06/11/2012 - 9:00 AM in New Member Introductions
Hi, I am another newbie. I have inflammatory arthritis, cervical spondylosis and DDD. My problems are at C3/C4 and C7, then L5/S1. I have just been referred to an ortho, for evaluation due to severe nerve pain and numbness, weakness etc etc.

I take lots of meds, gabapentin and MST, amitryptykine, tramadol etc etc.

Just wondering really how you cope? I am in pain sitting, when I walk the pain makes me feel sick and giddy. I need to be mobile as I dont want to gain weight etc. Pain meds barely take the adge off, and I dont want to be sofa bound and weaken muscles.

I use various aids, walker, crutches etc, hot water bottles, ice etc.

Would appreciate any advice or tips. I am really nervous about the thought of surgery. The gp wants me to see a spinal neurosurgeon.

Thank you


  • Hi Suzy,
    Welcome to sh. how long have you been in such pain?
    It is by far the biggest challenge to live in chronic pain. I tried keep my mind busy with a big variety of things.
    I see your being referred to specialist, so who has been treating you.
    I say get into see the neuro doc as soon as you can, and see what type of exercises they say is safe for you do to.
    I have all over pain , back legs, fibromyalgia, neuropathy.So I feel your pain.
    I also suffer with alot of lung issues.
    Have all your concerns and questions for the specialist ready. If you can bring an extra set of ears.
    For me meeting new doc is nerve wrecking, jsut going thru all the issues, pain you have all over again.
    Thats why I bring my pain, medical journal with me, its one of my many notebooks my brain is just not so sharp.
    Ask alot of ?? to the doc and here. Its great support group.
    stop in and chat sometime. ppl come in all different hours.
    neck,bone spurs pain started 04, back issues and fusion l4,l5 06~hardware removed.
    good few yrs. 09 pain sharp, numbness feet,legs, diagnosed fibro, neurop. legs.lung issues.
    daily goal do good thing for someone.
  • Suzygirl. Well at least its not suzyboy, A boy named suzy would take a lot of heat in the school yard,

    Dont ever name your kids suzy if its a boy, Name them Bill,Joe ,Bob never suzy,

    Sorry nerve pain is hard to deal with for sure, Most meds never worked for me for the nerve damage, You need to follow up with neuro or your ortho and consider surgery if needed if alternarive treatments dont help,

    Welcome and best of luck,
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • hi and welcome to the forum! we are here to offer you support and answer what questions we can. so glad you dropped in!! swimming is a great way to keep the pounds off and not injure your back any further.. there is also the exercise ball that you can use at home! there is information on the site about it! please be sure and talk to your doctor or pt when it comes to starting an exercise program.. walking is also great, just do what you can do! the idea is to move and move as often and as much as you can..your pt may have other ideas for you as well! good luck to you.. stop by anytime! Jenny :)
  • Thanks for the replies. I should have said I am only 39 and that the disk degeneration has caused scoliosis. I am unable to go swimming as my body doesnt work in the water, I think it must the position of my neck and back pressing on the nerves.

    I have weak right side and numbness in left foot. Foot drop etc in right foot. Legs give way and spasm or jerk reguarly. Pain is intensely excruciating, slightly better if lean forward.

    Walking weakens me, as I have proximal muscle weakeness, I assume due to my back.

    Am hoping it will be an injection first, rather than surgery.
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