I was injured in 2005. I had left rotator cuff surgery in 2005 and a fusion at C5-6 in 2006. I am now disabled but hopeful.
I would like to share with everyone that I found out what has been causing my "I want to die moments' as I call them. Celiac Disease.
For years, my husband and I could not figure out why on some days my pain level went through the roof, and on other days it stayed at a lower level. Some days I literally did nothing - and I would be up all night in pain, putting ice on my neck, suffering with a severe headache, very nauseated, many times vomiting. Other days when I thought I did a lot - no increase in pain, no vomiting.
I also spent most of the days in bed, asleep. I just didn't have any energy and was always in a mind fog. I blamed the pain med's for this.
I was diagnosed on March 15th 2011 with celiac disease.
Since my birthday was on 3/17, I decided that would be my last gluten day. I ate everything that had gluten in it. I wished I had been warned against this, but I finally found out why I was up at night with ice packs on my neck due to pain that no med's touched, a severe headache, and why I was sick to my stomach and vomiting. It wasn't what I had done, it was what I had eaten.
This disease is way under diagnosed and I would like to spread the word, so that others do not suffer for as many years as I did.
My doctor warned me that my blood test might come back negative, they did. But the pictures he showed me and the biopsy said Celiac. He said even if my blood test came back negative his diagnosis is Celiac Disease.
My family and friends can not believe the difference in me already from being on a gluten free diet. I'm still dealing with microscopic colitis, but the mind fog is clearing, and I do not have the "I want to die moments" all the time. I also do not take daily 3 to 4 hour naps, I am losing about 1 pound a week without dieting. Next, I am going to go dairy free because I also have microscopic colitis which is still causing me problems.
I am hoping that once I get the colitis under control, and my body heals more that I see more improvements in my pain and energy. I have accidentally gotten gluten on two occasions, and it is shocking what it does to me. Just a few crumbs of gluten and my pain level goes sky high and I just feel awful, I mean off the charts bad.
For years I blamed the red sauce on foods for my digestive flares. It was the pasta and pizza dough, not the red sauce.
I have already seen such improvements. My fingernails were getting so thin and growing out cracked. Now they are thick and healthy. Who could have known. I thought it was just old age (I'm 53).
I have to wonder if many of my current medical problems are somehow tied to years of having this disease. I was always hungry and ate all day long, but my body was malnourished. I"m still in pain daily and on pain medications. My lower back is now falling apart and it looks like I will be heading back to the operating room. I have developed bursitis in my right hip (from sleeping on it for years since it was the only side without pain). I have suffered from migraines all my life.
I am hopeful that being on a gluten free diet my healing after my back surgery will go better for me this time. Something for everyone to consider who has suffered with IBS for years. It took the doctors 30 years to figure out one of my problems.
Good luck to all of you.