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9 level spinal fusion

derrick33dderrick33 Posts: 2
edited 06/11/2012 - 9:02 AM in Scoliosis
Has any one had or will have a spinal fusion for scoliosis? Two years ago I had a 9 level fusion for my thoracic scoliosis. Im just trying to find out how their surgery went and if they have any pain still...because im certainly still in pain...


  • I had a 15 level spinal fusion for a 68 degree curvature 3.5 years ago. The result has been amazing. No pain, can do anything. My result has been far better than I'd dared hope. My curve is now 22 degrees and barely noticeable. My advice is to find the very best surgeon you can because the skills of your surgeon will be your best hope for a successful outcome. You might have to travel. I did, and it was worth it.
  • I'm so interested in how your surgery went, whether it is good or bad news. JenG, I know you told me how well your surgery went and I pray my results will be as good as yours turned out to be! I mean 15 levels is a lot of levels! And I'm worried about my 9! I'm really very happy for you and know you did your homework in locating the best surgeons in order to have such a good outcome! That of which is of the upmost importance.......

    I still have a few more tests before my surgery is rescheduled. My surgery was scheduled for this month, however, during the cardiac stress test, it indicated I had a 90% blockage in my right coronary artery. So, we had to take care of that first with stent surgery. I'm just thankful and feel Blessed the blockage was found before I had a full-blown heart attack! I already had a hemorrhagic stroke when I was 53.

    I am now 65 and my Scoliosis has been progressing so fast, (nobody seems to know why either) that I need to have spinal fusion soon. I'm just so afraid even though I feel I have the best spinal surgeons in the U.S. It still is a BIG decision, but I could be paralyzed if I don't have anything done.

    I wish I knew more about Scoliosis, more about this surgery, and trust me, I've researched on here and every place I know. Spine-Health has a tremendous amount of information that has given me more knowledge about this subject than other places I have looked. It's just that there are so many pros and cons with the surgery, but I'm certainly not living now, except to do a chore, then lie down, or back in bed or on the sofa and not a lot of fun when my grandchildren visit. So, I will decide tomorrow when I talk to the surgeon..........

    My left shoulder hangs so low, clothes look terrible on me, but more than anything is the pain I endure each day. I know there is nobody who can tell me what to do, I just worry about not being as mobile, about the fusion failing, and so many other "if's" and "things."

    Tomorrow I go for the rest of my tests and a consultation with my surgeon, I have a list of questions, however, my fears just won't go away.

    Derrick, I do hope if you had your surgery, you will share your experience with us here. Thanks to everyone for listening!
    And, JenG, thank you for such positive, uplifting words and information you always give. I can't tell you how much it really does help!

  • Can I just say, I think you guys are an absolute inspiration.
    Before I embarked on this journey I was scared of having just a 2 level fusion, but to hear that some have had 8,9,10 and even more is amazing!

    Good luck guys and lets all stay pain free !
    2 level Discectomy 2000 open surgery
    L4/5 Discectomy & L5/S1 Laminectomy 2005- (Cauda equina) open surgery
    5 x joint injections 2012
    Discogram Dec 2012
    Dec 2012 - 360 Lumbar Fusion L4 -S1(BMP), Disc replaced L3/4, Bilat trocanter injects
  • And still, everything's fine. I couldn't be happier with my outcome (nobody could have been more scared!) I can work all day in the garden without a twinge. I can take care of all my grandchildren, even playing with them, piggybacking them, even skateboarding with them! Without a twinge. It has been the best thing I ever did for myself. I walk every day, at least 2 kilometres, we still go kayaking, I try to stay fit. My surgeon gave me only one instruction: walk every day. I feel 35, not nearly 62. My advice for anybody considering surgery for scoliosis: the most important thing is to find the very best surgeon you can, one with loads of current experience, not an orthopedic surgeon (who works on knees and shoulders) or a neurosurgeon. Find a surgeon who specialises in scoliosis and is familiar with adult and revision surgery. If you have to travel (and many do,) it's worth it. Then, get as fit as your back allows. After that put your trust in your surgeon. Best of luck to all contemplating surgery.
  • There are lots of stories of failed surgeries, but there are also lots of successful ones. I had issues with shirts too :) No matter what I did, they were always falling off one shoulder. My initial surgery was done from about T3-L3 at age 9 for 60/60 degree curves.... It allowed me to have a wonderful childhood, taking dancing, yoga, etc. I have two children. I put off seeking help in my 30's, resulting in waking up one morning unable to walk. I had developed a 74 degree curve completely cutting off the nerves in one of my legs. Even after 5 weeks of hospital stays this past summer (age 32) I am so greatful for the surgery. I started right back to work during preplanning (I'm a teacher), I have only missed one day due to back pain, we have take several mini family vacations, etc. At my last visit we discovered one of my rods has slipped out of a bracket. I'm having a CT scan monday and a dr. visit at the end of the month to decide if/what/should be done. I'm not going to be discouraged. Although it's been a bumpy road, I've been able to walk it. I hope you the very best. Good luck, and let us know how everything goes.
    33yo mom of two. My surgical history...preadolescence scoliosis, kyphosis, and a hot mess.... 5 spine surgeries and lots of items added I wasn't born with (titanium, peek, surgical steel). Guess cremation is out. TSA loves me.
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