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SCS Battery Pack Movement

JRnFLJJRnFL Posts: 56
edited 06/11/2012 - 9:02 AM in Spinal Cord Stimulation
A couple of weeks ago I started to have pain in my tailbone and hips. The pain gradually increased to the point that I can only sit in an office chair or dining table chair because it keeps me very erect. So, last week when I was charging my SCS, I thought that the batter had moved towards my spine but I blew it off. Over the next few days my battery moved from the outer left edge of my back to now right on top of my spine at the waist! I sam my PM SCS doc last week and he said he had never seen a battery move - my doc is one of the leaders in the SCS field and has done hundreds of the permanent implants! I'm having surgery day after tomorrow, Thursday, 5/3 and the doc is going to move the battery around to my abdomen. So, dealing with my "normal" pain levels have been made almost unbearable with the additional pain of the battery being jammed up against my spine. I believe if it could go between my spine and skin it would be over my left side now. Absolutely unbelievable! I cannot wait to have the corrective surgery - doc says if it is infected, he will remove the battery, sew me up and wait for the infection to clear and then cut me open again!


  • I have a SCS unit to for over 2 years. I have never heard of a battery moving before So I hope you have good luck. And do what your Dr tell you.

  • I had mine move 35 days after implant it was hitting my ribs. They moved it down and now it feels like it's hitting my hip.... How did your revision surgery go? I have 3 more weeks to go I hope...
  • I had my battery pack revision surgery a week ago this past Thursday, May 3. My pain MD is also the surgeon. At the hospital he tells me I need to go to the larger battery pack because I use my SCS at such a high rate the battery cannot keep up. Then, as we discussed, I need to have the batttery in my abdomen. When I woke up, I had a huge bulge in my abdomen basically on my waist. I ended up in the ER the following Thursday as I couldn't keep anything down and was vomiting like crazy. Ends up that my gastroparesis has reared its head again and my narcotics are clogging up the old pipes too much. I saw my pain MD the next day Friday and he was the most emotional that I have ever seen. He says that I now need a pain pump that will be in addition to the SCS. He wants to give me the trial ASAP but I have to heal up from the multiple wounds from the battery replacement. I swollen from my spine around my waist to where the battery is in my abdomen. I'm wearing my brace again even though my pain MD said I would not need it and I've been out of work since the surgery even though he said I would only need to be out a couple of days. On top of that, at the ER I had an X-ray to see what was going on and the radiologist diagnosed me with calcific pancreatitis which is probably a result of all the narcotics I've had to take for the last 12 years. I need my medical insurance from work but it is becoming impossible for me to work too. My wife is totally disengaged and unsupportive and sees my medical issues as an inconvenience to her life although I am the sole provider as she decided last year that I made enough money that she did not need to work anymore. Sorry, I digress. Anyway, my battery back area is still swollen and very tender and I'm now sleeping with my brace on. I see the pain MD again this Friday for another bandage change. I'm waiting to hear from the GI specialist who is reviewing my ER records. Okay, what is next?
  • I am so very sorry that things are just not working out the way they should! It's totally unfair. Also, it is unreal when people who should care about us aren't there for us as much as we need. Hopefully you have others (aside from your pals here at SH!) who can offer you the much needed support.

    My apologies for not looking for the info regarding your brand of SCS, but I'm three weeks post perm implant myself. I'm admittedly tired, maybe a little lazy, most definitely in pain. What brand did you have, and what did you move to that caused a big bulge?

    Things will look up, keep us posted, and of course good luck to you! I'll be sending happy thoughts.
  • "My wife is totally disengaged and unsupportive and sees my medical issues as an inconvenience to her life although I am the sole provider as she decided last year that I made enough money that she did not need to work anymore."

    Just...wow!!! I thank God every day for my wife. I refuse to say any more than that. You have the prerogative to express your opinion about your family members (wife), whereas I, or anyone else here, do not have that right. I think I can speak for most here, though, in that please know that we are here for you and if you need support or to just vent, a good number of us will be here for you in that respect.

    I'm very sorry for the multiple issues you are dealing with. It just is not fair for one to suffer this much. You will be in my thoughts and prayers!
  • Things have improved with my SCS. The incision in my lower back healed okay and the battery in my abdomen really sticks out - my doc says I do not give him much to work with so it will stick out. With the battery in my abdomen, supposedly charging and changing settings should be easier but they are much harder. For some reason, it either takes 10 or 15 minutes to get a link between my charger or programmer and the battery. I've complained to my St. Jude's rep and they sent a replacement charger but I continue having the same issues. It is better having the battery in my abdomen because I'm sitting on it or leaning back on it which was brutal for me.

    My pain MD is setting me up with another spine and pain mgt group that does the Kettamine infusions. Only one doc there does the treatment and it is an inpatient procedure. Supposedly, if I am a good candidate, the Kettamine infusion will reset my receptors and I can reduce my pain meds because my receptors will be back to where it was before I started taking the pain pills. Anyone have any experience with kettamine treatments?

    I am struggling with short-term memory now as I forget a lot of what I hear and sometimes when I'm working I forget what I was doing and have to put effort in to figuring out what I was doing. I honestly believe much of my memory problem is related to the numerous procedures I've had under general anasthesia. This is tough for me as I have a lot of demanding requirements in my work. Most days, it is a real struggle to get up and get dressed and to work all day. But having work helps me to not dwell on my pain so I plan to hang in there as long as I can - I was on disabiity for 2 years after my chemotherapy several years ago and I was so bored and I went back to work as soon as I could. My relatives say I'm dumb for not staying on disability but I'd rather be productive then sit at home all day.

    Sorry for the disertation. Have a good evening. Jerome
  • Thanks for your kind words. I have the St. Jude SCS. My pain MD is also the surgeon and he works with all the SCS companies. I asked him why St. Judes and none of the others and he replied that certain SCS' work better in differen situation. In my case, he thought St. Judes was the best fit for me.
  • thanks so much for your thoughts. This board has been very helpful for me. Thanks again!
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