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I'm new to this forum

edited 06/11/2012 - 9:03 AM in New Member Introductions
This is my first post and I can say it's gonna be a bit long. I have had OA in my left knee for about 6 years, along with chrondomalachia and a baker's cyst, had sugery 3 years ago, and numerous steroid and cortisone injections to no avail. Now I still have constant knee pain and numbness from my left knee down to my foot. My right knee is not quite as bad so they have really only prescribed Mobic for it currently. My neck(cervical) has had about 3 vertebrae that I know when they are out, ( because my neck gets stiff) and I can physically push them in. I havent seen a dr for that yet. Two of those vertebrae I can move in a seesaw motion. My PCP said its okay to "pop" them back in and that other than that she didnt really know what to do. Now on to my lower back..The pain there has been going on for about 6 or 7 years. Recently they have tried epidural steroid injections in my L4 and L5 discs twice so far and the pain management specialist said there is one more option if this doesnt work although he didnt say what that was.. No one has told me what my diagnosis is except that pretty much I have OA in most of the joints in my body. I had to find out everything about my knees by sneaking a peek at my chart before the computer closed it down one day, when the doctor got called out of the room, unexpectedly. Of the many doctors that I have seen a few have told me to lose weight and the pain would get better, so I lost 20 pounds and , no I do not feel better. Did I mention that I am only 36 years old. No history of any arthritis problems or joint problems in my family, etc, and otherwise I am very healthy. My husband doesnt understand the pain I am in all of the time, and calls me lazy if I do not take care of the kids, the house, help with the yardwork and work a full time job running my daycare. My children try but they are only 8,8, 5 and 17. My mother refuses to let me do anything when she is around and calls daily to see how I feel. People look at me, someone so young and think "maybe" she is faking it. I am not. I hurt all of the time. I'm depressed and am on medication for that. I'm on prescription meds for insomnia as well. I'm the caretaker in my home and pretty much for my whole family. I do way more than I should and pay for it later, just because I cannot say no. I have always felt hat its my duty to take care of my family and friends.For instance I run a home daycare, and after my knee surgery in 2009 I was forcing myself to work three days later just because I know she depended on me. I am so glad to have found this forum. I hope I an get the support and advice in here that I cannot get in my personal life. Does this get any better? Are there any ways to deal with the pain, stress and feeling of worthlessness that anyone can advise me of?


  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,730

    Welcome to spine health. Your carrying a heavy load for just 1 person. And with your health issues I really feel bad for you. I think you can get a lot of support here on the forums.
    Have you had any imaging done to your neck and lumbar?
    Good luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • I have had xrays of my lumbar done but none of my neck.
    I'm on 5/500 Lortab 3 times a day, mobic 15 mg once a day and neither of these are helping. My doctor said how do I know the mobic isnt helping, and doesnt understand how I can say I just know. I did ask for a change in meds or increase in the dosage and his response was if we did that you would run the risk of being a drug addict. My husband , who I mentioned before is for lack of a better term "a baby", because every time the doctor diagnosis me with something or I have pain, whether its in my neck, back or knees, he has it worse. I do not have insurance but luckily a group here called charity care will offset up to 75% of the cost of my medical bills, not the meds, or xrays, but even the 25% plus the costs of tests and xrays is a little more than I can handle sometimes. Thank goodness for payment plans.The hard part for me is that I would love to work outside of the home, but if I stand for more than 20 minutes at a time, my knees kill me and if I sit for 30 minutes or so my back kills me, so I really do not know of any job that I can do without being in pain. I really can't afford not to work and from what I have read about filing for disability, here in Virginia, is that you have to be not working for at least a year before you can apply. I'm danged if I do and danged if I don't. Hopefully , I can get the support I need to cope with most of it here. It's hard when you dont look sick and you are young for people to understand, but here I feel like I have found people who understand.
  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,730
    Hang in there. But I think you should try to find a more compassionate Dr. One who understand Chronic Pain!
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
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