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Good to Know I Am Not Alone

Hello everyone,
I have been diagnosed with DDD and have had worsening back pain going on for about 25 years. Only in the last 10 has it really put me over the edge with pain. Initially thought to have been arthritis, the Orthopaedic speicialist at Duke says it is DDD. I was getting trigger point injections from my Rheumatologist for the past few years which was helping somewhat, but I started needing them more frequently. I decided to see an Orthopaedic surgeon for another opinion. As surgery is not an option, I decided to try the spinal injection in the sacroiliac joint. My doctor from Duke was great! I never felt anything except a couple or minor pricks. Truly no pain. They used live CT Scan images to guide the needle right into the exact area of distress. (Not fluoroscopy). I felt really great when I left. Partly because I was still under local anesthesia. I was so elated thinking I would feel this way until the steroid shot wore off. WRONG! About 5 hours after the procedure, my ears started ringing like you would not believe and a headache which made my "Top 10 Headaches of All Times" list. These increased in intensity during the night. I did not sleep at all and had to call in sick the next day for work. I kept thinking,'this will wear off soon'. It did but it took almost two days. During this time I had the flushed face, hot and cold, like I was going through menopausal flashes again. Frequent urination. Irritable. It has been 13 days since the SI, and low and behold, I am having a period at the ripe old age of 62. This made me very nervous until I found this web site and saw other post- menopausal women have also experienced this. I called my ORTHO's support team to discuss the horrible headache and was told that she had not heard of this reaction before. I found this forum and see that many people have had this reaction. I think I will email her this link. I was not informed of ANY of these possible side effects before, during or after this procedure. Overall, the level of pain is significantly better, but I was expecting more. I thought I would be able to kiss the Vicoden goodbye, but still am taking two of them every morning. Thanks for listening. I really know where many of you are coming from. I spend way too much of my time "SITTING on the sidelines" and I do not like it one bit. I pray our circumstances can all turn around so we can be happier and more active....................Jan


  • Hello, dont have much for ya but i will tell you this. I have seen other posts on this forum abut severe headache after injections. When I had my first injection 3 days later I had my 1st & only panic attack. I tweaked a little getting up. I still dont know if it was all mental & i just freaked myself out that bad or if something in the shot moved somewhere & i had a reaction. But I did have 2 more shots after with no more probs.

    Good Luck to you!
    L5S1 REMOVED herniation. Years of pain & compression. Microdiscectomy complete!! Trying to be super smart & safe with recovery!
  • I am 72 and I have found that steroids can mess up your hormones. I joke that I have had more hot flashes from steroids then from menopause. Things should get better with time.
    I have Ankolysing Spondylits, Ulcerative Colitis, DDD and a bit of OA to make things fun. Most of my problems are due to inflation of many joints, tendons and ligaments. I see a GP, a Rheumatologest, an orthopedic Dr and a wonderful PM.
  • I felt as i was going to have my period after 1 of my injections at my age of 51 years young,
    Did i mention i am male !
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,730
    An epidural steroid injection? And did you try to lay flat on your back for at least 24 hr.? You do want it to stay right where they put it. Until your body absorbs it. And you don't want it working it's way down. I was told the longer you can stay on your back, the better the chances of a good out come.
    Good luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
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