I have spinal stenosis at several levels. Lumbar has responded well to neurosurgery in 1992 and 1996 but chronic pain and spasm are not helped by medication-and I've been prescribed most available in my country.
Epidurals,trigger-point injections and numerous procedures have not helped. I have a SCS implanted for leg/lumbar pain,which is a major help but as my cervical stenosis increases,my quality of life deteriorates.
I have read many posts where people complain of arm weakness and loss of power,headaches,neckpain and many people seem to be unaware that these are symptoms of severe compression of cervical discs which need to be assessed quickly. Yes,you cannot have an MRI with a SCS implanted,but a CT scan will show clearly the severity of compression and do have this carried out as soon as possible as the discs may be herniating.
Meantime,while I decide with my neurosurgeon when I need surgery, I am,and have been for years,resistant to the effects of medication. Is there anyone else who has this problem? If so,how do you cope? I use meditation and it can be of use-if one persists and is consistent with it's use. I have found Jon Kabatt-Zinn's Full Guided Mindfulness,and his guidance in general,a help.
I have to travel long distances to see my consultants,and surgeries.consultations and procedures are incredibly expensive. I struggle to pay two sets of private health insurance to cover most (our public health system is in a shambles for years now,and growing worse). I cannot travel by car because I need to stand,walk and change position often so I travel 4 hours by train each way and taxi-that takes stamina and leaves the pain in worse condition. I often have to stay overnight,at more cost,to enable the return journey.
Anyone out there in my position(s)? I would be glad to hear from another like me. Because of the loss of power in my arms,I cannot often use my keyboard,so replies or further posts will be slow!