So over the past couple of days I've been researching like crazy and reviewing my MRI images because my diagnosis from pain management of Myofascial Pain Syndrome doesn't really line up well with everything I'm experiencing, and the therapist who did my recent PT eval strongly disagreed with it and called it a "we don't know what it is so we'll call it this" diagnosis.
Well I think I've found the answer. Cervical foraminal stenosis. All of the information I have uncovered about this diagnosis lines up well with what I am experiencing. When I went over my MRIs I found imaging supporting this being the case and affecting the C7 nerve root, which would also line up with my symptoms.
My question is, what is the best way to bring this up to the doctors? I want to be heard. I know that there is a chance I may not be right but I am quite confident in my findings and definitely think that it is worth looking into. Do I bring it up to pain management? My primary care? Go back to the orthopedic spine doctor that referred me to pain management after my MRI was normal? Any advice is appreciated!
I had my pain management appointment at eleven this morning. The way my PM clinic works is for regular appointments you see PAs and NPs and then you see the MDs for your procedures and testing. So the NP (the same one I always see) comes in and I tell her how the aquatic therapy has aggravated my pain drastically and how I'm upset and angry that they are diagnosing it as a muscular problem but both the physical therapist and the er physician disagreed. Then I tell her how I did some research and took a look at my MRIs and start to tell her about how I believe that at the C6-7 there is narrowing in the neuro-- and she interrupts me right there and starts talking about how my films were read by a radiologist and I am not one. I interrupt and ask her to at least look at the images I have brought, she refuses and I push and she says she will have it reread by a radiologist.
Then she starts to act like she is going to end the appointment and I am *not* okay with this since at this point with my condition I am in such a bad state my quality of life is down the tube and my career is starting to go down the drain. I tell her as such and she says "I can't give you narcotics without a reason." Never once did I ask for narcotics, suggest them, anything of that sort.... I am incredibly upset and I explode crying and yammering on about the pain and this and that I can't do and how my life is. She kind of freaks, says "I'm going to go get a doctor", and leaves the room.
She returns with one of the MDs that I haven't met before and I tell her right away that I don't care whether they give me narcotics or not I just want help. She asks some questions about my pain, and with my answers she each time confirms that they are related to the C7 nerve root... Then she says that we can up my nerve pain medication (Topamax) and that I can have a diagnostic nerve block to see if the C6-7 is causing the problem. So on Tuesday I am going to get the nerve block! Quite happy about that. If nothing is found from the nerve block or the reevaluation of the MRI then the doctor said I will be getting a bone scan as the next diagnostic step.
Microlaminectomy and discectomy at C7-T1 on April 26th.