So, I still have not done the C1-C3 Fusion some of the docs I've seen have suggested. Other docs have suggested I don't do it, so it's kind of an odd scenario. Some are also now saying to fuse C3 as well for various reasons.
I have an Os Odontoideum, my pain is cut in half now following having prolotherapy done on my neck. My greatest annoying symptoms are feeling like my head will roll off (it feels wobbly and literally is) and feeling dizzy/off balance/tremors. I do get nasty headaches, but I am managing through them most of the time.
My thing is if I agreed to doing the surgery, I DON'T want to spend my life seeking pain relief through pain medications, with doctors who pretend they have no clue why you have pain, and never having a clear thought in my head because I'm strung out on pain meds or in CRAZY amounts of pain.
My questions are...and to anyone responding...PLEASE tell me the full extent if you can of these questions--it would be SO much appreciated if you would
1. After surgery, on a scale of 1 to 10 (with 10 being the worst pain you ever experienced) what number is your pain at on a regular basis (I'm not meaning soon after surgery but in your daily life after all is healed).
2. Are you on ANY pain medications AFTER your surgery? If so, what kinds and do they make you feel "out of it?"
3. Were you able to go back to work after this surgery...normally?
4. Do you regret having this surgery? Like are you SO miserable you don't feel like you have a life anymore...
5. If you are someone who has had GOOD results, what do you feel was beneficial? I know some had trauma that broke their neck and are happy to be alive and moving...so if that's the case that would be cool to hear too...but I'd still LOVE to hear about the reality of your outcome with the negative parts. I just want to have a clear grasp on it all.
I'm still sitting on the fence, thinking that if God made me this way, then He meant me to remain this way. I had a few good intentioned people tell me things after their C1-C2 fusion...like: "I'm FINE" or "I'm glad to be around" or "Those of us who had successful outcomes are out busy living our lives and don't come on the forums"
But again...what does that say...you survived but are relying on pain medications forever with no full relief...but you are "fine" "alive" "living your life"....I'd love to know what the REALLY means...
For someone like myself, being at the mercy of doctors for medications for pain and more surgeries and such...just doesn't sound like "living" to me
I don't trust doctors much you could say, because they say "just enough" to get you to commit to trusting them to do stuff to you and then YOU have to live with the consequences that they left out. I've been through a whole load of "doctor talk" who have purposefully misled me...I didn't let them all know I was a medical professional myself...the things that some doctors do and say should be a crime...no exaggeration. But of course...there are some gems out there, too, but wow, there are some truly horrible ones!
Thanks in advance to you all who respond...