Hi, I am new to this forum, so I apologize if I don't post correctly. I had a ACDF at C5/6/7 in early 2007. I had difficulty swallowing from the time I came out of surgery. There really wasn't to much said when I questioned the surgeon, he said it was "typical" & would shortly go away.
It never went away, & he had no answer's.He referred me to an ENT. The ENT scoped my throat via my nose on multiple office visits, saying my throat was very swollen, red, & most likely GERD. I have never had GERD, which was confirmed after being scoped twice by a GI doctor. This continued to the point where I had lost so much weight was very weak, also had difficulty speaking, at time breathing, & spasms in my throat which caused me to feel I was going to die. Nobody seemed to concerned, I began feeling it was in my head, After a year of living hell, I have 4 children,prior had worked FT in an ER as an RN, ran 40 miles a week, & now my life was not my own anymore.
It was through testing in NYC,with equipment the hospital i had been using didn't even have, or suggest. The test showed damage to my nerves, causing me to aspirate even small amounts of fooj, & my own saliva there is no cure,. I now have a feeding tube.
I then had severe neck pain, I had bone spurs all over my spine, I used a cadaver bone mixed with what I was told my bone shavings, & my blood. This condition has made my life a nightmare, yet worse my 4 kids watching me choking,trying to use the suction machine I have before it developed into aspiration pneumonia.I also herniated in the two discs above my fusion, & C7 T1 below. I woke up one morning with severe pain in my R arm, so bad it caused me to vomit,I had no idea what was wrong.I had to be admitted for oain control. I later needed surgery on my C8 nerve root due to severe compression from the disc, & bone spurs. I have a C 5 entrapment on my L side, thank GOD i have expedienced pain, yet not to he point i would consider surgery.
I needed a port a cath to administer Valium for the spasms, had it in on 05/11, woke up in 09/11 with a fever of 105.2 I was in septic shock. The blood cultures from the port were the only ones to grow out bacteria,. It was a very uncomman gram negative bacteria, & truly thought i was going to die, The infectious disease doctor told me he couldn't get a surgeon to remove my port, they felt it would go away with IV antibiotics via port for 6 weeks,I did the 6 weeks, then had blood cultures drawn from my L port, & R arm.I fot a phone call about 36 hours later telling me to go directly to the hospital I had now the same gram negative yet it was throughout my body, & a gram positive also throughout my body.
I am unsure if I have any type BMP was used without my knowledge, The worst of all is having put my family through this nightmare with me,The hospital is 65 miles each way. my husband is a Saint, & my kids have hidden emotional scars that will never leave them. My son is 21 & refuses to go to college for fear I will die. My three daughters have always been there for me as well, not going out with their friends, or go places unless they know i am not alone,
Anyone who has any information about the use of BMP off lable for cervical surgery's I would appreciate your input.