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Spinal Epidural Abscess

newby01nnewby01 Posts: 2
Just looking for others who've had or are dealing with Spinal Epidural Abscess.
Went through 5 days of hospitalization (mid-April), had severe urinary infection and severe sepsis from stephlecaucus(sp?) areus and e-coli.
I am in my 6th week of receiving 2mg Cefazolin x 3times per day. The spine surgeon had removed 50% of 3 of the lamina of backbone near
the end of the spinal cord, to help the infection. The infection began to destroy the nerves on my right side, so I have some muscle weakness
in my right leg. I am grateful though just to be able to walk. The infection had spread up & down spine, into the muscles surrounding the spine...
and of course in the whole cavity. At this point I still feel like I am "trying to come into my body".
Today was my 2nd (3 week) post-operative visit to the spine surgeon. Today he told me that one hour into the 2 1/2 hour surgery (my organs
were beginning to shut down) I was within a few hours of dying (at the worst) or (losing my ability to walk at the least).

Anyway, I feel pretty alone in dealing with this "thing." It is pretty rare and strangely I have to end up getting something rare.
Emotionally I am still in shock.

I am wondering if there are a few others out there who have dealt with this and what kinds of emotions have you gone through?

Newby01

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Comments

  • I'm in Aus so it's a different time in the US but didn't want to leave you there. When they wake up there will be people who have gone through the same thing as you, and the moderators will be online.

    There is a an Intractable Pain Handbook on this site that you may want to read. If you look under the pain management forums at the top of the page there is just about everything covered so you might want to read some posts from people who have had infections and how they felt. This is a great support site and you will find people who have been through or going through the same thing as you.
  • Greetings to you. Thank you for your quick response and suggestion regarding the Pain Handbook. I had lots a pain for a couple weeks, but it has now pretty much subsided. At present I have to "go easy" as I get better and be careful about lifting anything. I'm glad to be here, it can feel so alone to have something that is so rare that only one in 1 million people get.
    The medical community has no explanation how the abscess could occur. It makes you feel pretty vulnerable. I am now 60 and have to start thinking about the mortality issue sooner or later.
  • One thing about pain it makes a day when it isn't so bad, into a really good day. I learnt to appreciate just a couple of hours with less pain. At the moment have to remember pain is my enemy. I'm sure someone will be online soon. Not many people get much sleep.
  • I had emergency surgery on a lower lumbar SEA six years ago. This has been an incredibly lonely experience for me. Fortunately, although I was sceptic, the surgery removed the infection and I was sent home on IV antibiotics for three months afterwards. I have learned to cope with the constant pain, and have sought out different ways to treat/deal with it. I'm on pain meds daily, as well as meds to deal with the side effects of the pain meds. To say this has changed my entire life would be putting it mildly.

    It would be nice to correspond with others who have been through this, too, just to compare notes and learn more about what's in store for me in the future. So, anyone else out there dealing with life after an epidural abscess, post surgery, too? What have you found most helpful for pain management? Any other issues crop up after that are related to your surgery? Have you returned to work? If so, what changes did you make that helped? Any help would really be appreciated, thanks.
    Laura
  • JoeyGJJoeyG Posts: 1
    edited 06/12/2014 - 10:58 AM
    I had surgery on May 7th of this year to remove a spinal epidural abscess that led to sepsis. It was caused by a staph Aurelius infection. I had a multi-level laminectomy. I also had thoracic surgery at the same time for 2 mediastinal masses that were found on the full body MRI. I was very lucky that I was not left with any arm or leg weakness. I still have some low back pain but am walking a lot. One of the mediastinal masses couldn't be taken out and further tests have to be done to determine whether the masses are infectious. I'm on a PICC line with antibiotics being pumped into me. I was previously very active and was training for my 2nd degree black belt in karate. I'm 47 years old and I'll be starting physio next week. My neurosurgeon says he's optimistic that I'll make a full recovery, but I'm interested to know how well others have done over the long term who've had SEA. This has been a terrifying and traumatic experience. I have a wife and two teenage kids and they were told before my surgery that I might not make it through the surgery but that even if I did, I might be quadriplegic. I haven't yet returned to work and although I'm getting psychotherapy, I'm an emotional mess.
  • Hi My father 63 years old had just been diagnose with Spinal Epidural Abscess and been perform surgical to drain those bacteria that compress the spinal cord. Today is day 4 after the operation, he can't able to move his hand and leg. He is a throat laryn cancer patient and have previously done radiotherapy and chemotherapy six months ago.

    Is there anything i can do to fasten his recovery ? We are from Malaysian. Really needs help here. The surgical specialist tell me that his recovery of hand and leg movement is low. However i just would like to know is there any alternative way to let his spinal cord damage re-growth. I really can't bear to see him cannot move at all. Can't talk and he is in tube feeding.

    Anyone experience this ? Please share your experience with me.
  • I was diagnosed in June 2016 with sea I was sepsis very ill they sent me to surgeon they couldn't do surgery it would cause more damage then good in spent 3 weeks in hospital I'm doing iv antibiotics for 9 weeks my back swells lots of pain but I can walk and I'm alive they will start antibiotics by mouth along with iv due to last mri infection still there it's been a nightmare due to being in the bed 
    so seeing others are dealing with this is helpful I'm wondering when it will be over and the damage in my spine 
    I had no spinal surgeries never used drugs I'm 49 I fell in a grocery store 2 weeks prior they say due to how aggressive had to come thru skin 2 weeks prior why it landed in spine they have no idea just hoping any others can tell me how they are coping 
  • LizLiz Posts: 7,910
    edited 08/31/2016 - 5:24 AM
    Hello Iwireup

    This is a old discussion the member who created it hasn't been on the forum since, I am closing it.
    I suggest you create a new  discussion with help from the link below..

    Please click on the link for useful information

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
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