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titanium rods

had cancer in vertabray called chordoma in 2009.had vertabray removed and had rods inserted and screws in my back.my rods have broken twice since then.once in 2011 and then again in later part of 2012.have alot of pain still.i am on pain meds but that does not always help.first time they replaced rods took small bone out of my lrg and fused in my back.second time they used part of my hip.now i have ostioporosis from proton radiation they used to make sure cancer was gone
its been 4 yrs no cancer but my whole life has changed.can not walk very far and i am bent over some.its gets very discouraging because i am 63 and can hardly do anything.i know i should be glad im alive ifanyone else has had this problem wish i could hear from them.i guess chordoma is rare but mass general hospital in boston mass have an entire dept.where people are treating for this.if anyone thinks rods can not break i am a perfect example they can.


  • LizLiz Posts: 7,832
    edited 07/20/2013 - 10:09 PM
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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • EMS GuyEEMS Guy Posts: 920
    edited 07/21/2013 - 4:31 AM
    So sorry to hear about the medical issues you've had. Have any of your doctors said why the rods have been breaking? Titanium in pretty strong.

    Perhaps you could talk with your doctor about using a different type of rod so you have support. Also, would a back brace help with your posture?

    Best of luck!

    Several Epidurals, L4-S1 360 ALIF, Numerous Facet Joint Injections, RFA x2
  • jellyhalljjellyhall Posts: 4,372
    edited 07/21/2013 - 8:52 AM
    You have certainly been through a lot since 2009.
    I have titanium rods and screws in my lumbar spine and titanium cages in my neck.

    I know that rods and screws do fail and either break or come lose sometimes, but having your rods break twice must surely be unusual. Has your surgeon any theory why this has happened?
    Do they have a plan to repair or replace them again?
    Long may you continue to have no sign of cancer. That must be a great relief for you.

    I hope that there will be a way to get you out of this pain and enable you to be more active.

    Welcome to Spine Health. This site is a wealth of information about spinal problems and treatments. Here on the forum we are a very friendly bunch and we understand spinal problems and the pain that can be caused.

    I hope that someone will be along to share their experiences and also hope that they may share something that will be of help to you. You are not alone in remaining in pain. Just knowing that can be a great support.
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