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severe upper back pain near right shoulderblade.

im 19,have spina bifida myelomeningocele,and have slight scoliosis. i dont know how bad,doctor just said it was pretty slight curve. most of the time its fine becuz im having to lay down most of time cuz everytime i sit even just for a few minutes my upper back near middle to lower part of right shoulderblade starts hurting badly! heres all my meds i take with dosages:neurotin 900mg in morning,1,200mg in afternoon,and 900mg in evening,methadone 15every 6hrs for pain,baclofen 10mg 3x a day,flexeril 10mg 1-2x a day and i take hydrocodone/apap 5-325mg 1-2tablets every 6-8hrs as needed. i see a pain management doctor once a month usually but shes on maternity leave but is coming back august 25 so then i can see her to see about med changes.i do not see physical therapy yet but am gonna see them for first time ever on august 5 finally! im stuck in wheelchair and in bed too sometimes.please if anyone knows of anything i can do or take or anything please let me know! thanks! have a great night! :-) <3
im miranda,im 19,have spina bifida,have severe chronic low back pain,hydrocephelus w/ vp shunt,and have to be always in a wheelchair because i cant walk more than like 5 seconds at one time.


  • I have had severe thoracic pain caused by a motorbike accident for 8 years. If you have a search on this site, or under Sandi's avatar you will see a dermatone chart. This is where the pain radiates from your thoracic spine.

    I have tried every conceivable therapy and the only thing that has given me some pain relief is a physiotherapist who put the ones above my wedge 80% crushed fractured T5, the T3, and T4 especially back into alignment. So if you can see on your MRI when the curve stops at the top of the spine ask them to check the ones above ones for alignment. Sometimes these do not show up on an MRI the MRI's are taken lying down.

    You need to research on Wiki what each of the drugs you are taking and what they are for. I only know the painkillers that you are taking - I don't know if any of the others are muscle relaxants. You also need to combine the painkillers with a muscle relaxant or your muscles just spasm the alignment out again, into the wrong place they were sitting before.

    You can feel if your ribs are out by touching your side. If they are sticking out ask someone to push them back in gently - look at how your ribs sit as they curve upward and join to your thoracic spine. You need a physiotherapist who can do this. Often when your spine is damaged the ones above take over for the ones below as your body naturally tries to heal itself.

    When they go out again due to muscle spasms or just leaning the wrong way I have a small rubber ball which I use on a wall to try and get the vertebrae back into place.

    These are two things that have eased my pain a bit after 8 years of constant excruciating pain.

    You can also ask for facet joint injections as the vertabrae are probably sitting on a nerve. I have not had these but a lot of people here say they are great and my new specialist could not believe I have never been offered them.

    I also sleep with a pillow between my knees as this is supposed to take the pressure off your spine. If I forget I am in more pain in the morning.

    If you bend or twist it can make the pain worse. Have you kept a pain diary to see what makes it worse. It just needs to be Activity and pain levels every 30 minutes. I kept one for a week and was surprised at the things that made it worse.

    I know how agonising thoracic pain can be, I thought it was shoulder pain for years but if you have a look at the dermatone chart this is where thoracic pain radiates. Currently I have my shoulder taped into the correct position and my thoracic vertebrae taped into the correct position. If they are not taped my body just spasms them into the wrong place.

    Have a look at your hips as well and see if they are aligned. I wear a built up shoe on one side so my hips are aligned.

    Hope some of this helps. There are not many people who know about your thoracic spine as it is uncommon to have it out of alignment so try and see someone who has dealt with the thoracic spine before.

    I am sorry you are in pain at such a young age. Also please take someone with you to the PM Dr to explain how much pain you feel as sometimes it is hard for you to advocate for yourself. With thoracic pain you have to do most of the research yourself.

    There are quite a few young people on this site under the scoliosis forum who should be able to advise you. These things have worked for me but everyone is different. I got mine through trauma so it might be different for you. Hope some of this information helps. have a less pain day.

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