im 19,have spina bifida myelomeningocele,and have slight scoliosis. i dont know how bad,doctor just said it was pretty slight curve. most of the time its fine becuz im having to lay down most of time cuz everytime i sit even just for a few minutes my upper back near middle to lower part of right shoulderblade starts hurting badly! heres all my meds i take with dosages:neurotin 900mg in morning,1,200mg in afternoon,and 900mg in evening,methadone 15every 6hrs for pain,baclofen 10mg 3x a day,flexeril 10mg 1-2x a day and i take hydrocodone/apap 5-325mg 1-2tablets every 6-8hrs as needed. i see a pain management doctor once a month usually but shes on maternity leave but is coming back august 25 so then i can see her to see about med changes.i do not see physical therapy yet but am gonna see them for first time ever on august 5 finally! im stuck in wheelchair and in bed too sometimes.please if anyone knows of anything i can do or take or anything please let me know! thanks! have a great night! :-)
im miranda,im 19,have spina bifida,have severe chronic low back pain,hydrocephelus w/ vp shunt,and have to be always in a wheelchair because i cant walk more than like 5 seconds at one time.