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Pain Management Pump questions

This is my first time ever participating in any sort of Forum.
I'm sure from what I've read I'll find a lot of understand and knowledge.
My husband had a pain management pump put in in 12/2011, after trying what felt like everything, and every medication.
He had two discs collapse crushing his sciatic nerve and causing permanant nerve damage.
We've never anticiapted having our lives back again. It's been the greatest blessing to see him have his quality of life restored.
Although it's not without its problems also, the pros so far outweigh the cons 10 fold.
Our biggest issue if receiving answers. Other than our specialist, people know essentialy nothing about his situation. And thats made things extremely difficult at times. Like now.
My husband woke up on August 7 feeling increasing pain, and also signs and symptoms that his body's not receiving medication. The reps came to the 3rd emergency and said the pump is still working. Even though Bill's body said different.
Bills pain management doctor is out of the office on vacation, as is his PCP. With no doctor to take his calls or help his patients.
I'm just curious as to wether any one else has had the catheter come dislodged, or pinched?
I do know this is fixable. The thought of life without my husband having this pump is terrifying to us. This has been the only negative things that's happened thus far....it's been so worth it??? And we would never ever change that decision to get the pump. Any advice or similar experiences would be so appreciated!


  • LizLiz Posts: 7,832
    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and continues to grow.
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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • We just got back from the doctors.
    Some background....We went to the emergency room on 8/9/2013. They sent a representative to read the pain pump. it read 4ML was left in the pump. And the rep went into the history....This is where i'm lost!!!
    At the appointment today the doctor did a dye study to make sure everything was flowing properly. And it was. The pump read that there was 4ML of medication left....HUH?
    The pump is supposed to set off an alarm when meds are low....No ALARMS.....It was stuck at 4ML and was actually empty since August 8, 2013!!!!!
    So not only was my husband suffering from excruciating pain from the nerve damage, but was also suffering sever withdraw, after being medicated with dilaudid in his pump for 1 1/2 years.
    Please let me know if anyone has had similar experiences???? I could really use someone of similar issues to talk to.
  • I have had my pain pump 4 years now aand have not had any problems so I can't help you there. Bu t I am sendig you an IM with information that will help you greatly.
    best to you.

    Patsy W
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