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Spinal stenosis with myelopathy

Hi I am 37 years old and have just been diagnosed with spinal stenosis with myelopathy about 4 days ago. Although the diagnosis brings a sense of understanding of all the symptoms I've been having over the years I am very scared. I have never even heard about anything like this before now. I would love to connect with anyone who can relate. Thanks


  • LizLiz Posts: 7,832
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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • RickilalasRRickilalas Posts: 559
    edited 08/27/2013 - 9:56 PM
    What level is your myelopathy at and what are some of your issues.
    You may PM me.with any questions if you don't want to post them.
    Mine is at the C 5/6/7 area but it can effect anything below your damaged area.
    Have you had any surgery yet? Is there a plan?
    I don't know where to start. It may sound a lot worse then it is

  • Thank you for your response! My issues are also at c5,6 and 7. I have had many symptoms for over a year and did not expect it to have anything to do with my neck so this suprised me. I got my mri results on Friday morning, Saturday I had an appointment with an anesthesiologist for a consult on an epidural injection and after the dr there did a few tests he said he would not do an injection on me because I have myelopathy and I had to go see a neurosurgeon to set up surgery. I have an appointment with neurosugery on the 5th. Everything has been overwhelming and it's a lot to take in.
  • I also had myeomyallcia at C4,5,6 and because of that I had to have a posterial cervical fusion from C3 to C7. You need to find out if there was any permanent damage. Mine right side has some weakness and my handwriting terrible and that is permanent but surgery took the pressure off the cord. This I think is one of the best places to be for you to begin doing your research. Helped me so much in the beginning and still is.

  • Thank you. About 4 years ago I fell on my stairs trying to catch my 1 year old nephew who was falling. The dr told me that I injured my rotator cuff. I was in and out of the urgent care and dr office through that first year and even had some pt. on the second year after my injury my right hand began to have bouts of numbness and pain also in my forearm, and shoulder. Went back to dr and they gave me a cortisone injection in my shoulder which did absolutely nothing for the pain. Throughout the years after that I had been in and out of dr office with lots of pain in my shoulder, down my arm and numb entire hand. My hand eventually stayed numb and became very weak. I woke up one morning about a month ago and had extreme pain in my neck that radiated down my right side. I could hardly move the pain was so bad. Went to urgent care and they told me I had a kinked neck and to rest it. Shortly after that happened the neck pain did go away but it felt as if my head was too heavy for my neck (if that makes sense), it felt very uncomfortable but not totally painful. So then soon after that I was at work and my hand changed color and felt so swollen I thought it might burst! I went back to the dr where they told me I had carpal tunnel and gave me a brace. I was then referred to the physical medicine department which after a few tests have me an emg which came out normal. So I had the mri of my neck and here I am
  • By the way I never even had carpal tunnel!! As many times as I've been in and out of that place over the last 4 years I'm so dam frustrated that they never figured it out until now!! I have pain all the time, I am tired all the time, and my newest symptom is my body feels sooo heavy when I walk or move! I get dizzy if I turn my head to fast and constantly feel like I'm about to get the flu or something! It's been a long and frustrating road. I'm hoping that having surgery will take some of these symptoms away! Up until recently I had no idea all of these symptoms could be related to myelopathy. My dr and myself blamed a lot of these symptoms on depression!!! Which I'm now wondering if I ever even had depression at all?
  • Oh and the headaches!!!!!!! Things drop out of my hand constantly
    Sorry about the multiple posts!
  • I did not notice what kind of surgery and when?
  • Hi
    First off your not the only person this has happened to. They miss this alot.
    Good thing is they will probally do surgery and take the pressure from the cord.
    Once the cord is no longer.compressed some of your issues may go away in time.
    After that decompression surgery they will maybe do another MRI to see how much cord damage you have or maybe don't have. Don't give up yet you still have a.chance of getting out of this ok.
    Dropping things alone should have been a sign. It's a classic issue with compression or cord damage at that level. Don't feel bad they tested me for lyme disease, kidney stones, kidney cancer and a few more things before a surgeon just asked me what was wrong with my neck.
    He just looked at me and knew something was wrong.

    Be very careful not to do any more damage and stay on top of this. They should be doing something very soon don't wait long has more.damage may be done.
    Any questions ask

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