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Please Help Me To Help My Son's Chronic Pain.

beckyvsbbeckyvs Posts: 1
edited 09/09/2013 - 1:15 PM in Chronic Pain
Hello everyone,

I ran across this board in hopes that someone can help. My son is 33 years old, he has tried searching for doctors to help him and I am now trying to find information or a place to start.

He has chronic pain in both legs; he suffers daily to the point that it is becoming unbearable for him at times. His legs stay cold, he describes the pain as a deep chronic ache.

He has saw two neurologists . Edited to remove facility name; there an EMG for his muscles and blood tests were performed and all game back fine.

He has tests on his back, he has saw numerous Internists. His last try was a doctor edited to remove facility name, who ordered a skin biopsy which came back negative. The told him he didn't know what it was since the skin biopsy was negative. He came across as since it wasn't the first condition that he thought it was there could be no other possibilities.

He has been dismissed by doctors, told to deal with it, we all have pain at sometimes in our lives. His pain is well past the point of normal pain; I see the tears in his eyes from the pain, he has purchased numerous items such as pillows, mattresses, massage devices for his legs, anything in the hope of some relief.

I stay sick from worry that the pain will become to much for him one day to keep going on; I feel like he is giving up and feels there will be no end to his suffering. He is not looking for drugs to manage his pain, he is looking for someone who can hopefully find the cause and find a way to ease his pain.

I guess my question is does anyone know which kind of doctor he should see? We're not sure at this point as to try another neurologist or a pain specialist or if there is anther try of specialist he may need to see.. I have been researching pain specialists, but knowledge is limited in this area as to whether they just treat the symptoms of try to find the cause of the symptoms.

I'm not asking for diagnosis, I just need help in finding a place to start, the right kind of specialist.

I thank you for your time, and I pray that someone can help give him a place to start. We are willing to drive anywhere in the country for a good physician who will try to help him. We live in Southern Virginia, and I have researched specialists, but it's like a needle in a haystack. He has been dismissed my so many doctors, I don't know how to find a really good one....

Thank you again,


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  • sandisandi Posts: 6,343
    edited 09/09/2013 - 1:13 PM
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    Has he seen either a board certified ortho or neuro spine surgeon ? Any MRI's of his spine done? I think that if I were you, or him for that matter, I would start with one of both of the above mentioned doctors and find a physiatrist with a specialty in in the spine.
    You'd be surprised at the number of leg pain problems that stem from his spine.............
  • I went 8 years without a correct diagnosis. I believe it was because all my MRI's were in the prone position. I know Sandi probably disagrees as there are arguments for both sides but if I had to start again I would get a standing MRI - you can see the difference on You Tube.

    Also Sandi has an avatar of a dermatone chart. If you look at it - you can see where the pain radiates if it is his spine. There is a larger one on this site. He may be able to work out where the pain is radiating from by looking at the dermatone chart. Good luck, it is really awful not having a diagnosis or the wrong diagnosis. Even if it is bad I would rather know. Good luck, don't give up, I finally found a specialist and physiotherapist who looked out side the box and found the reason for my incessant pain after 8 years and around $30,000 of my own money. I used the MD rating site and this site to find him and finally had some answers even if they weren't what I wanted to hear at least I know.
  • There is a huge difference in a regular neurologist and a board certified spine surgeon- whether they are ortho or neurosurgeons , if they are spine surgeons, that is where you want to start......imaging studies can be anything from an xray to a CAT or CT scan and MRI tests. These are different tests done specifically to check alignment, or for structural or neurological damage to the nerves in the spine. If he is seeing his general doctor for this, you really need to find a board certified spine doctor......when you call to make these appointments, make sure that they work on spines, not other specialities.
    Good luck
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