My question is: when is it time to seek the care of a new pain doctor if you believe they're either not qualified or not interested in helping you anymore than they are currently?
Basically, the nurse pract. does the medication management and the main Dr. does the procedures. He's a wonderful man and the nurse isn't so much a great person. Every meeting with her is asking me questions off a questionairre that ask me things like "how much do you feel the medication is helping treat your pain". I usually respond with "It depends on the day. On good days it seems like the meds lower my pain to roughly a 6 or less. On bad days my pain still stays at roughly an 8 or 9." She will ask me to give her a number like a robot until I tell her I don't know how to answer that. There are a ton more issues that I've had with her such as: she wrote down that the meds aren't helping, according to me, that the epidurals have worked great, even though they haven't at all, and has me down for 3 green stickers to which I have no clue what I did. They never informed me of anything I'd done wrong, I've never failed a drug test, etc.
In order to try to alleviate my pain I've also tried these alternative methods:
-hot baths w/ magnesium,
My PCP, psychiatrist, and family all believe it's a logical idea but she does not. I just don't understand.
So I'm trying to start school and she put me on a wild goose chase. She said to see a pain psych a bit back. I called him several times and left messages every time. He got back to me 3 weeks after the first call and informed me that the nurse practitioner said not to see him. I said ok, she must have talked to my dr.'s . I made an appointment, she treated it like she didn't know me and she went to end it and I asked her about the short acting medication(which this is all about. I'm on 75mc/g fentanyl and that works wonderfully. I just get breakthrough pain occassionally and was asking for a short acting med which she kept refusing.) She said "did you see the pain psych?" I told her what he told me. She didn't seem to believe me. She told me to try again, get the radiofrequency ablation done on my neck, and go from there. I tried to contact the pain psych and still never got any response. I had my procedure done, asked ahead of time to talk to the main Dr. about my insatisfaction, and also let the nursing staff know to let the nurse pract. know I was doing so as a professional courtesy.
I had my procedure, doc always tells me how well I do w/o an anesthetic, and looks at my chart after comes into the room to talk and tells me: 1) I haven't seen the pain psych 2) I have 3 green dots 3) I said the meds aren't working 4) I have severe anxiety.
I told him about the pain psych dilemma, asked about the 3 green dots, told him the meds are working and what I tell her, and told him my anxiety is from feeling unable to control my breakthrough pain. The green dots were b/c of a "failed drug test" which was the 1st one I ever took in which I informed the nurse before I even knew of the test that I had found an old oxycodone from my previous dr. and took it yesterday bc of such pain. She said "I'm not the cops, don't worry about it, but don't make it a habit". the other 2 dots I still don't know of.
So the dr. told me that he will intervene but to still see the pain psych. I said ok, he called in an rx for norco and I went home. So, the norco ran out, later than it should have lasted, I called in a refill request and they're treating me like the Dr. never wrote an rx for it, that I'd never tried to call the pain psych, etc.
So I don't know what to do. The dr. is great, and treats me fairly, and also says that sometimes people like me get treated wrongly by accident by misunderstanding, and he will take care of it. I thanked him and told him whatever they need to make them feel comfortable with my safe use of my medications I will provide. I just hate that they are so polar opposite and though I really like him, I don't know if I should just find a new pain managment facility. I don't think he talked to them yet, I know in the end I have him on my side, but his time is hard to come by and I don't want to deal with all this in the meanwhile. Plus if I find a new pain dr. who's to say my record according to her won't give me a bad rap? She's never been interested in my case and I knew it the day that I offered her a copy of my pain journal which I had been keeping for 2+ years.
Any ideas, suggestions, etc. is greatly appreciated.