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Hello, glad I found the forums

To start, my name is Bradley. As someone who has spent a lot of time reading, I've been reclusive in opening up with too many people in regards to my chronic pain flare ups. As most suggest, turn to the Internet! Join discussions, get proactive. Well, this evening, I am compelled to do so.

This site is very informative, and I've taken suggestions for months from here to my own doctor visits to discuss my diagnoses or treatments. But lately, I've taken some steps back mentally/physically and it's causing me to want to reach out to others in similar positions. Thank you all for your past help and I hope I can provide my experiences in other topics when they apply. My profile is updated with my overall health history. But I've been in chronic pain for a couple of years, specifically in my back but unlike many with an injury or trauma, it varies in place as well as pain levels. I've been "formally" diagnosed with Fibromyalgia. And I hate the word.

I once was a 23 year old guy in the middle of a promising career (salary, 401k, benefits), newlywed with a toddler that I could spend all day in a bounce house with. That is when the back "spasm" pain began to grow on me - and I mean in frustration, and now I'm 26 years old, lost my career. Lost my health coverage. Lost my LTD case, couldn't find an attorney to take my case with the exception of SSD, in which I'm in the midst of trying to obtain, disability seems to be the only economical option for my family to get me back on a treatment plan. One that doesn't leave me to fend for myself, and figure out what step to take next. I think my goal is to get properly treated on a solid plan with a doctor or one of the many specialist I see with $ from loans for out of pocket expenses.

This is quite an introduction, but it spares a few questions and lets you know why I joined today. With also the advice from my therapist to , "get proactive, and take charge in your healthcare!"- the latter is harder than being proactive. But I'll begin my story and pick up if any comments, questions, or suggestions are made. Of course, just a hello back is nice too. "I feel your pain" has some compassion, and humor. :-)

My wife and I had just bought our first home last year (may lose it next year), had a new baby on the way. My back hurt, but I'm 26, just got a promotion to a senior position at the local bank I worked for, gearing for management and developing my own department. It was really what anyone my age would envy, a great "middle american" life with a promising future, unlimited potential. But, I couldn't take it anymore...after years of complaining, and finally some medications that quit working, my PCP referred to a specialist at a pain management center.

They ultimately ruined my career and financial stability through various misdiagnoses and for a lack of better words, mistreatment of my pain problem by overmedicating and doing procedures for non-existent problems. You can't work if you can't walk. You can't be dependent as a manager if you are in the bathroom 30%-50% of your day. That doesn't hold up for long. It was recommended by my superior to take health leave. After a huge hit for 3 MRI's - lumbar, cervical and neck. I was told by a new doctor at the clinic that I had a pinched nerve, MRI showed that I had none when I decided to get a copy of the results - lots of mistakes by them. You know the irony, a google search of the "specialist" I saw now shows the following Monday (my appointment was a Thursday). he lost his license due to many issues I suffered due to his extremely erroneous initial (in person) diagnosis of MS, extreme worry about my liver and scared the heck out of me with words I didn't even understand. I was taking 4-5 Narco 10mg tablets a day at the time, valium and remeron before bed. That day, I left with instructions to take 2 "new" pills a day, until I got used to taken them on schedule. The total was 7 new medications,and a total of 9. No idea when going to the pharmacy that it would cost over 300.00 with insurance to get "brand name" Opana ER, IR, Lryica, Arthrotec, Remeron 2x the past dose, some kind of back numbing patches (brand name only also checked)...it was insane.It didn't stop there, Rayos (a steroid) and a few others. Why I didn't question this I'm unsure of, but the doctor only said the names of the medications, what they would help with and when to take them. But I thought, this guy knows what he's doing, he's starting what I need, a treatment plan to get back into shape and back to work before my FMLA period ended.

Well, 12 months later without insurance. I stand alone with several doctors in the loop, none I can see. Medication is mediocre for the pain I'm in and life has spiraled down. My family is here to support me. But as the man of the house with the ego I once had, "Fibro" is diminishing the quality of life. I feel a lot of guilt, but that I why I am reaching out. Maybe this isn't a support group, but the ideology behind this site has helped me gain perspective and it provides me support. But now I feel the need to share, and hope to have productive conversations with the community on this forum.

I do apologize for my long introduction. So many of us have stories, I read a lot. But I've never told my story to someone except a doctor or immediate family member, like my wife, that actually understands. So thank you if you read this far. Some other history is in my profile, and I'm open to discussion if you choose too. Thanks so much!


  • You will find a lot of support here. You are not alone. I hope that one day soon you will be able to get your life back and at least have your pain under control.
    Acdf C5 C6 12/13/12
    Laminectomy and Discectomy L5 S1 12/12/13
  • getnixdggetnixd Posts: 3
    edited 11/14/2013 - 1:15 PM
    I think just typing that novel helped release some stress. It's funny how that works. I tell my counselor/therapist that I am in a constant state of irritation due to pain, and that the suggestions to think positive, read positive, and be happy just don't quite cut it. Then I have my wife who gets the wrath of me every day she gets home from work and I'm feeling pretty ill - so I had to turn somewhere.

    I probably could have started my own journal with that post, but I've already done so. I have pages upon pages of basically "me" documenting my health and it's current states. But it does no good on the mind to rehash out depressing thoughts. Thank you again for taking the time to post - and a big thank you if you read into my story. I'll be certainly looking into other thread topics and discussions as I may not of learned a whole lot yet about coping and getting better, but I can CERTAINLY help others in my position not end up in the same type of situation I did.
  • As you continue to explore the site you'll soon realize that you aren't alone. I've learned a lot by reading others posts. I wish you the best and try to keep your chin up. I now how difficult chronic pain is.
    Herniation of l5 S1 l4 , DDD , microdisectomy in June 2013 and re herniation in September
    Cervical herniation at C5-7 Jan 2014 with impingement of spinal cord. 2 level cervical fusion Feb. 2014 and 2 level lumbar fusion in April 2014
  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
    Here are just some of the highlights:

    - Spine-Health contains detailed medical libraries of articles and videos that address almost every spinal conditions and treatment

    - The Wellness section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.

    - Under the Resource tab, there is a section Doctor Advice Health Center which can be invaluable.

    - As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family who provide comfort and the advantages of a support system. You are now part of this family that is approximately 20,600 international members and growing daily.

    - It is very important to understand the Forum Rules to make sure all of your posts do not violate any of the rules.

    - As a new member, it is helpful to understand the 'makeup' of these forums, how to make posts, tips on adding images and much more. You should read Forum FAQ

    Here are some links you should take a look at:
    Read before you post
    Tips for Newcomers
    Understanding the rules

    All of this will help make your threads better and improve the times and quality of responses you will receive.

    You can also find us on Facebook at www.facebook.com/spinehealth, Pinterest http://pinterest.com/spinehealth/boards/ , and Twitter @SpineHealth.

    If you have any questions or need assistance, you can use the private message facility to contact any one of the moderators on my team:






    Ron DiLauro

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • dilaurodilauro ConnecticutPosts: 9,839
    Dont worry, your opening thread was far from a journal.. Spend some time here and you find out how LONG threads and post I make!
    Liz's post point out some excellent resources here. I know right now, you are here to find out more about your condition, pain levels, talk to others that share the same, etc. Last thing you want to do is read all about the How tos and What not to do.
    But do keep that post handy, it will become very useful at some point.

    You will make a lot of contacts here. Its very reassuring to know that you will be talking with other people who have walked your walk and understand. That will not always mean people will agree. There are some that believe that easy love responses, hugs, etc is the best approach. Who knows it may be. But then there are others that will give you tough love.
    That works for many, turns some people off.
    Myself, I am all about Providing information, Giving you the Truth and lie somewhere between easy and hard love.

    I know you have found the right site.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
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