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Thankful for this site and group!

I felt so alone in my own sufferings and experience, but after finding all of you and reading some of your posts, I realized that I am not so alone. Wow! I seem to feel a bit better after reading so many of your posts. I have had a back disability since 2007, but not until this August did I gradually become home bound. Really freaked me out royally. So here I am still in this condition although I changed insurance companies in October, they are still slow at diagnosing me completely. I finally got approved for some home-care services which of course is a huge help/anxiety reducer. Meanwhile my world has shrunk extensively, and I cry a lot. Missing my old back health and life. I still can't believe I have succumbed to this condition. Yeh, right hip hurting, right leg, calve, and foot numbing ect.....but I know it is coming from my low back. Another MRI and it shows bulging L-3 and some scoliosis on that same area. Also some narrowing, Mild DDD at multiple levels and some arthritis of course. But doctors in past have said my MRI looks pretty good! Not so with me. I have had 2 past EMGs, and it showed abnormality. Yet my lastest doctors still don't know if that is neuropathy, peroneal neropathy, or what?? MRI says that it doesn't see nerve impingement. Yet, I know what I feel and it is serious. Weakness too. I can't walk very far or for too long. So, I am constantly laying low to home, using ice all the time. I am sensitive to drugs and they scare me to death. I have weird reactions to Aleve and advil. Makes me more anxious and spaced out, as well as messes with my respitory. Can't handle any stress while on them. Yet, doctors have not perscribed me anything else yet knowing I am sensitive to this stuff. So, I am stuck. On the 31st of this month I will have one more MRI of my pelvic area which will take one in a half hours in an open MRI. wow. Hope I can survive it. This painful condition is very debilitating and wearysome. As with so many of you....at least I feel less afraid now knowing that so many others are having difficult time with their painful conditions too. It seems so urgent and immediate that we should get help and relief to our conditions, yet doctors seem to take there time as if it were something normal. And now I am realizing that these conditions of ours are kind of normal. I mean so many cases. It's hard. I just hope that I can get some freedom sometime again. I keep telling myself I am just going through a season and to look at the bigger picture. Thanks for all your sharing and input.



  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
    Here are just some of the highlights that are available as tabs on the main Spine-Health menu bar

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    Conditions Detailed medical libraries of articles and videos that address almost every spinal condition.
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    Spine-Health Forums These are the forums you will be using
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    Health Videos Index to all Spine-Health Videos

    As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family[/u] who provide comfort and the advantages of a support system. You are now part of this family that is approximately 27,00 international members and growing daily.


    - It is very important to understand the Forum Rules to make sure all of your posts[u] do not violate any of the rules.[/u]

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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • I am sorry to hear what you are going through but like you said your last MIR looks good. Like you I felt alone until I found this site , I been a member for about 3 years now and have found it a great help, I also am thankful.
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