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Need chronic pain support

I am new to all of this I a very tired of living in chronic pain. Normal people do not understand what I go through on a daily basis. After reading the letter from a person living in chronic pain it brought tears to my eyes. That is me he was talking about! Hope I can get some support here. I had cervical fusion back in February 2012 due to herniated discs. I have artificial disc put in C4 and c5-c7 fusion. The fusion did not take so my surgeon wants to do another surgery. I am on workers compensation and they will not approve the surgery as of now. My pain management doctor wants to try a spinal cord stimulator but was refused by workers compensation. I am currently on a fentanyl patch and take oxycodone as needed. I have a very low tolerance to any medication so I live with nausea and occasionally vomiting. I take zofran and promethazine for n/v but have side effects from the promethazine. I also take lyrica. I have a hard time with constipation I am currently taking amatiza for that but still sometimes go 5 or more days without a bm. My pain is constant and ranges from a 8-10 depending on the day or time of the day. I also have a lot of other diagnosis of spine (DDD and other) which I think is causing pain also. Just sitting up in a recliner causes my pain to increase. I stay in bed a lot because being up increases my pain. Within 5 minutes of being up I can feel my pain increase. I also have a hard time eating due to nausea and lake of appetite (feeling like when I was pregnant). I drink ensure and try to eat small amounts through out the day. I have lost 36lbs since the being of my journey and continue to lose. I am 5'11" and only weigh 131lbs. I feel like I have good doctors taking care of me just need authorization for treatment. I am here to try to get support and understanding with my pain.
Thank you for having a place that we with chronic pain can go to.



  • Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
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    Conditions Detailed medical libraries of articles and videos that address almost every spinal condition.
    Treatment List of treatments to the conditions identified by Spine-Health.
    Wellness Section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.
    Spine-Health Forums These are the forums you will be using
    Find A Doctor This provides with a method to search for doctors in various locations.
    Doctor Advice Health Center The Resource tab, has many important features. You can browse various doctor advice on given spinal situations, you can browse clinical trials and view a comprehensive glossary..
    Health Videos Index to all Spine-Health Videos

    As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family[/u] who provide comfort and the advantages of a support system. You are now part of this family that is approximately 27,00 international members and growing daily.


    - It is very important to understand the Forum Rules to make sure all of your posts[u] do not violate any of the rules.[/u]

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    I am positive any member, new or old will find this Chroinc Pain - Step by Step thread very valuable.

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    What are your spine diagnosis'? It is difficult to suggest things when we don't have the information necessary to offer suggestions.
    I would strongly encourage you to read the Step by Step Guide to Treatment for Chronic Pain in the links included above....it outlines the steps for successful treatment of spine pain.
    And be sure to check out all of our other forums as well.
  • Hi gods child my husband also lives in chronic pain I'm on this site looking for people with same prognosis and treatment. Although I don't have pain I'm sad to say that living with someone in this much pain is very hard. My husband had lumbar fusion over 10 years ago at the age of 21 and last winter had laser surgery on thoracic area. We kept taking him to ER cause we thought it was a heart attack. Now he has bone spurs growing in the area of the fusion. He is on same meds as you. He goes in 2 weeks for a procedure where there r going to burn some of his nerve endings that censor pain. We r praying this works because if not than that would mean the pain is coming from the spurs. If so the surgeon said he couldn't do surgery on it. It's like living in a nightmare.
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