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Senate Bill 453 Pain patients Bill of Rights

KBambiKKBambi Posts: 17
edited 02/10/2014 - 10:17 PM in Chronic Pain
You can Google it to find text. I'm hoping this helps me get what I need from my PM Dr as of right now he is failing to manage my pain. Has anyone else used this bill, taken to their Dr to try and get better pain management? It just passed in 2013


  • please be specific, how is he refusing to treat your pain? is he not giving you the meds that you want? is he not doing procedures like mri or cat scan? to respond to this post, one has to be as specific as possible if you need help.
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • there are also bills 453 for about 20 different states and they all say different things. what specifically does this bill state that you have issues with with your pain doctor? one states for injectable ephinephrine, and california states another thing and hawaii another. what state and what provision do you have issues with?
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • Just to make a quick point, better pain management doesn't specifically mean narcotic medications. Your doctor will prescribe for you what he feels is best for you, not necessarily what you want. I'm not trying to be harsh, but that's the reality of it. Walking in to your doctors office with something like this asking for medications will send up a red flag and the doctor may think you're just trying to score pills. Totally not worth it in my opinion. Your best bet would be just to explain to him/her your concerns and let them take the lead. I do wish you good luck.
  • dilaurodilauro ConnecticutPosts: 9,859
    if you just search on Bill 453, you will find many states that have their own. I read some of them, and there are differences between each one.

    What state do you live in and what part of the bill do you believe your doctor is not stepping up to that?
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • I know as patients we have rights but I've never heard of a pain management doctor who appreciates being told what to do. I'm lucky. I'm prescribed narcotic medications & honestly don't believe I could function without them. I have tried every conservative measure to control my pain & improve my situation. I remember thinking that narcotics would be the only answer but quickly found that they're not. I had to find a total plan that works (most/some days) for me.
    I've been under the care of 3 different pain management doctors in the last 7 years (1 very briefly) & I've 'interviewed' several others when my PM doc moved away. One stated that he never prescribes narcotics for chronic pain. I don't believe that demanding narcotics or showing them any 'bill' would of changed my treatment for the better..the opposite!
    I became very frustrated & depressed trying to find care. Moving from England too Texas I was very confused by the whole medical system. The priority here seems to be stopping drug abuse & making money (I'm sorry this is my personal experience. I know there are some very compassionate, knowledgable PM doctors it just seems impossible to find them sometimes!) & some doctors simply don't want you as a patient if you've already had all of the expensive treatments & need long term narcotic medication. It was a horrible time for me but I didn't give-up..
    All I can suggest if you're very unhappy with your care is investigate other options in your area. Do you have a good relationship with your family doctor? Have you discussed your concerns regarding your PM doc? He might know of a different PM who specializes in chronic pain & would be a better fit for you.. You can make an appointment to meet with new doctors before you become a patient. I took all of my records, MRI, procedure notes etc with me & asked them how they would proceed from there.
    I wish you luck but in my experience of PM docs I don't think saying you have the 'right' to get narcotics is going to yield the results you want. Like all of us you need your pain managed. I hope you find a great doctor who going to help you do that.
    Osteoarthritis & DDD.
  • http://publichealth.pasenategop.com/files/2013/11/SB453.pdf

    Sorry I went MIA. My PM Dr had by request put me on Duragesic patch 25mics to start and I had been taking 80mg Oxy and 8mg Dilaudid a day. I told him the 25mic patch wasnt even going to touch the sides of that. So anyways I went straight into opiate withdrawl and it was hell on earth. Im now back in severe pain, trying Gabapentin but it doesnt seem to do much, not even make me sleepy. I do have an appt with a new PM Dr March 6th and the nurse told me they may try steroid shots in my back. I had a lumbar laminectomy, fell 2 wks after the surgery and now have a bulging disk as well, a pinched nerve in my groin and degenerative arthritis in my spine. I feel like I am out of options and living in pain is stealing my life away slowly. Im only 45! I have a son, grand babies a 5hr flight from me and I cant sit on the plane that long. This is robbing me of everything I love!
  • paddypawsppaddypaws Posts: 3
    edited 08/10/2014 - 3:47 AM
    I have Ehlers-Danlos Syndrome, and have been maintained on 50mg Fentanyl for TEN years. The original scrip was written by an official pain clinic after failing more conservative treatments over a period of 15 years.

    I was told to find a family physician near me that would write my scrip, which I did. Last Monday I went for a checkup/refill, and out of the blue was handed a paper with paragraphs put together from various sites: New Federal Law says take non-cancer chronic pain patients off narcotics, New Canadian studies show they aren't useful long-term.

    I had a relatively normal life for ten years. I thought I had a good doctor/patient relationship. I asked him what 'long-term' meant; doesn't ten years qualify?

    Came home, searched internet, made phonecalls. There is NO new law, NO new studies. Actually, there are studies showing the exact opposite. I feel betrayed, angry and anxious (which doesn't help my situation)

    Doctor wrote scrip for 25mg patches, am to return Thursday for 12mg. After that, he will make a referral to a pain clinic for evaluation.I argue that it is backwards for a doctor who is not a pain specialist to think he can titrate my meds; that is the job of a pain clinic. I argued this with the office manager who still didn't get it.

    I came home, went to State Medical Board site. After reviewing my right to adequate pain control "a doctor is required to continue current treatment until patient can be seen elsewhere" "a doctor who no longer wishes to treat a patient, must 'fire' the patient by U.S. mail, and provide 30 days of treatment in the interim". He didn't 'fire' me, as he says I can come to him for all other health concerns. Called Medical Board, talked to investigator, and was told I have a course of action against this doctor.

    That is fine, but does not help me at the moment. The Pain Clinic (who btw wrote the original scrip ten years ago) is booked until end of Sept.

    I began the 25mg Friday afternoon. Cannot sit long, fatigue, rebound pain at multiple sites, unable to use can opener, utensils, definitely can't drive. Trying to comply, because I have no choice.

  • LizLiz Posts: 7,832
    edited 08/10/2014 - 3:50 AM
    This is a very old thread, for best support and information I suggest you make a new thread in introductions, you can do this by clicking on 'create forum post' on the left column.


    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
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