Help! What do I do next?
I have been suffering from back pain for over 3 years now, I had a 3 slips/falls on hard ice when I was living in Sweden 3 years ago. Although it never caused much pain at the time, my back pain gradually worsened from this time frame onwards.
Since June 2011 I have suffered from constant chronic pain 24hrs a day, and to add to that I have severe muscular spasms. These spasms force me to the floor where the pain shoots up my spinal column from the coccyx and my muscles from my hips upwards go into severe painful spasms that thrash me around the floor. My legs also shake as though I am having an epileptic fit, although the pain is only from the waist up with the odd shooting sensation generally down my right leg.
This has happened over 30 times now each resulting in ambulance services to stop the pain as this is something my medication cannot stop. I am on a cocktail of Tramadol 300mg, Lyrica 600 mg and Endone and Valium when needed – every day now! I have tried managed exercise under a physiologist with a tailored program as well, however after a certain point my muscle tension flared back up and the spasms have started again.
My symptoms include my pain becoming excruciatingly worse when sitting, localised pain to the tailbone area (cannot be touched), uncomfortable when moving from sitting to standing, constipation and bowel movement increasing pain, constant urge to urinate however unable to or uncomfortable…..and now after three 3 years after a series of 3 spasms within one week, there is now severe bruising on my lower back and buttocks, pain during sexual intercourse and tearing of the muscle during the spasms.
I have seen specialists all over the place, and there is no structural damage to my spine. They have conducted MRI’s, X-ray, CT, injections of cortisone into my SIJ joints and previously into trigger points in my back. So my questions is how do I get my life back? I am 22 and just gave up a graduate program after studying for 4 years! I am absolutely devastated with this situation and cannot even look after myself, I have lost my independence, let alone my financial situation has now fallen into the responsibility of my parents. This cannot be my life….
Is this coccydenia or pudenal neuralgia? I feel like the symptoms fit, but it hasn’t been explored by doctors on the trail of excluding everything else. And which specialists can I go to that will understand both my daily coccyx pain and my severe spasms?
Does anyone else suffer from such severe spasms that hospitalise (A & E) you each time? How do you cope mentally, socially and physically?
Sorry for all the questions…I just need help, from doctors that I can trust! I feel like I have tried everything, but there has to be something more out there for me to gain more quality of life.