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Hi from the North East!

stephaniejane91sstephaniejane91 Posts: 6
edited 05/19/2014 - 1:44 AM in New Member Introductions
Hello everyone,

I have been suffering with scoliosis for about 3 years now and decided it was time to join a forum. I have had Scoliosis all my life, but it didn't start to bother me or become noticeable until about 3 years ago when I had keyhole surgery to remove my Appendix.

I have seen numerous Physiotherapists, GPs and Specialists which didn't help me until I met a Physio who sent me for an MRI scan which revealed that my curve was at 38 degree when they only thought it was 25. I have been referred to a surgeon in Middlesborough and my appointment came through for 8th June.

Is anyone else from the North East? I am originally from Newcastle but now live in Darlington with my partner. I am 22 years old and work up to 12 hours a day!

I am desperate for helpful tips to deal with pain....I take strong pain relief but it doesn't help at all.

Thanks in advance, looking forward to meeting everyone.

Steph x

Post edited by Liz. Forum rules prohibit the naming of specific medical facility.


  • I also have scoliosis, and had surgery for it when I was 14. I still have the S shaped curve, but the rods they put in for the fusion reduced the curve significantly. Like you, I also have pain, and had a pain pump installed.
    For you June 8th appointment, what are you hoping to have happen? Do you want to have surgery? What sort of pain meds are you taking?
    I know what my response would be to this, but is there any way you can reduce your shifts at work? It is likely contributing to your pain. I would have said that I couldn't reduce my work, but then it got to the point where I had to not just reduce, but stop working, at least in the job I had.
    Anyway, welcome- I've only been here a couple of months, but it has helped a lot!
    2000- spinal fusion, complete spine due to scoliosis
    2012- pain began, started treatment for chronic pain
    2013- install of pain pump, procedures to address complications
    2014-blood patch, spinal fluid leak
  • stephaniejane91sstephaniejane91 Posts: 6
    edited 05/19/2014 - 9:00 AM
    My appointment on June 8th is the first I will have with a surgeon. I'm hoping that he will either tell me there and then if he will do the surgery for me. I do want the surgery as I feel that I cant go on being in pain like this etc. I am wanting to become a paramedic and that wont happen if I'm still in pain like this as I cant even bend down very well!

    I take co dydramol and amitriptyline. They don't take the pain away but I dislike taking them as its not good for your body. As for work its a hard situation as financially I cant really afford to drop my hours as I'm paying for a house, bills, etc.

    thank you for your reply! I wasn't sure if anyone was around, it seems very quiet!

    did the surgery you had not fix you completely? X
  • My surgery fixed my scoliosis some. Meaning, my degree of curvature was reduced, and it's not continuing to curve as I age. Age 28 so far :)
    I had a question...does your meds help with the pain? I was kind of confused by that part of your last post. This is easy to do ;0
    Do you know what surgery they want to do? If it's a fusion, do you know how much of your spine will be fused? Mine is completly, on X rays you can see the rods and screws begin at my neck, and it continues just below my waist. The actual surgery I had when I was 14- life changing. Not so much at the time, because I wasn't in pain from the scoliosis. But now, the surgery has come back, and at least one issue is causing pain that they won't be able to fix. At the time I had my surgery, they took bone chips from my right hip, to help assist the rods and spine to fuse. It worked, but now I have pain in my hip, and when I returned to my original surgeon, he told me they use cadaver bone now because of others reporting similar pain.
    I hope you are doing okay for now.
    2000- spinal fusion, complete spine due to scoliosis
    2012- pain began, started treatment for chronic pain
    2013- install of pain pump, procedures to address complications
    2014-blood patch, spinal fluid leak
  • Hey sorry for the confusion in my last post. No my meds do not take the pain away, it more just eases it but with it being nerve pain it can awful and I struggle alot especially with bending down or picking anything up.

    Surgery would just be fusion but just in the lower part of my spine I believe. Need to wait and see what the surgeon says on 8th June. Thanks for answering my question. It really helps :) x
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