It's been 14 months since this started. I've now seen two neurologists and two neurosurgeons, had MRIs on my brain, c-spine, and t-spine, two EMGs, and a VEP test, and am no closer to knowing what's causing my nerve pain, muscle spasms, and numbness. They found a large herniated disc at T6-7, but the latest neurosurgeon (who I like and he apologized for not being able to give me more answers) said my symptoms are in line with a problem at T4. On the MRI, my spinal cord "disappears" in that area, which he said could be a sign of a cyst. So now he wants to do a CT scan with myelogram, which is compliacted by the fact that I have a platelet disorder so would need to consult with my hematologist first. I feel like I'm back at square one.
The good news is, he was open to my suggestion that we try something else first. The pain is manageable most days, and other than not being able to sit for long periods or twist in certain ways, it doesn't seem to affect me too much. So I'm starting neurontin tonight and going back in 8 weeks if it's not "resolved." And while I consider this a small step forward, I'm unclear why 8 weeks of a pain med would ever "resolve" a problem that's been going on for 14 months.
And does every neurologist/neurosurgeon run behind 3 hours or is it only the 4 I've seen?!?!
Ok, thanks for letting me vent. Off to get my prescription.