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Chronic lower back, butt, and leg pain

Courtney817CCourtney817 Posts: 2
edited 07/22/2014 - 4:49 PM in Chronic Pain
I just recently had surgical injections in my L5 & S1. I have herniated discs as well as nerve damage on my siatic nerve. For about 9 months i suffered from severe back/butt pain and was not able to put very much weight on my right leg. After having my first injection, it took about a week before i was able to walk normal again! It was such a relieving and happy feeling for me. But i still had severe back pain. My pain management dr did not want to refill my pain medication because she wants to try to get me off of it. (Ive only been with my PM dr for 4months, so i have not been taking medication for very long.) I have another surgery scheduled for Aug 6th also! The dr wanted me to start moving around and being a little more physical since i have been taking it very easy for 9 months. I do physical therapy 3 days a week as well. So i took her advice and did a little walking yesterday. Last night I thought i was going to diee! The later on the night it got, the more intense the pain. I took my nerve and sleeping meds and cryed myself to sleep. Tody was horrible but I am now experiencing very different pain. My entire lower back is hurting and well as my butt, thighs, legs, knees, ankles, and toes. I feel as though iam loosing feeling of my legs. Numbness, tingling, ache, and pressure as though they just want to explode. I can not walk. Is this normal? since i did just walk a little more then i have in a pretty long time? Im in excruciating pain and this is no way for anyone to live!


  • I would contact your PM Dr since the symptoms have worsened. Have you had any spinal surgeries?
    Progressive DDD
    Chronic S1 Radiculopathy
    Discectomy L5-S1 2002
    Discectomy, Laminotomy/Foraminotomy L3-S1 January 2014
    Bilateral SI Joint Fusion and 2 level spinal Fusion October 2014
  • I have had numerous hip surgeries when I was twelve yrs old, and finally hip replacement surgery when I was 48yrs old. I've had numerous back surgeries. Finally spinal fusion in. 1999. Three months later I was rear-end one the highway at a stoplight. And have never been the same since. I am 57 yes old now and I have constant pain in my hip and lower back. I has constant pain in my hip and back and constant pain that never goes away, even with strong pain meds. I am at my wits ends. Does anybody else out there who is suffer ring like me. If yes? Please feel free to correspond please. Baggins823
  • LC84LLC84 Posts: 599
    edited 07/31/2014 - 2:59 PM
    What procedure are you having in August? Have you seen a spine specialist recently? I have chronic pain also. It's a combination of back pain and nerve pain from nerve damage. I get similar feelings in my left leg, pain, numbness etc. The symptoms you described should be addressed. Is the pain in both legs? When I get severe back pain flares sometimes oral steroids help. I would contact your PM Dr and explain your symptoms. You may also want to look for another PM Dr if you're not happy with your current one. There are other nerve pain meds etc that can be tried to help minimize the pain. I have a trial coming up for a spinal cord stimulator. I'm hoping it helps with my nerve pain. If you're suffering that much then something else should be tried. If not with your current PM Dr than with another specialist.

    I hope you get some relief.
    Progressive DDD
    Chronic S1 Radiculopathy
    Discectomy L5-S1 2002
    Discectomy, Laminotomy/Foraminotomy L3-S1 January 2014
    Bilateral SI Joint Fusion and 2 level spinal Fusion October 2014
  • Hey Lc
    I had the Stim trial a couple years ago, i opted to try the St Judes version as it was the only one rated for scuba divers, it works pretty good (hard to tell long term in the trial, as the leads move a little when you move, thus totally changing the sensations), but i was in the early stages of my neuropathys and didnt want to just settle on that as the cure all..there were more options to try! Drs think this is caused by scar tissue under the sacrum from two previous surgeries for heriated discs at L4L5 rubbing the sciatic nerve or the pudendal nerve or both.
    I have low back ,butt, thigh paresthesia of the skin, sitting is really uncomfortable after 5 or so minutes.
    recently i had an epidural at S2 and S3 bilaterally and it has seemed to make it a little less sensitive, although there were two weeks of hell initially after the injections...going on 4 years now of chronic pain and vicodin daily
    i think the meds are as bad as the pain sometimes. Good luck on the trial!
  • I had to update everyone, turns out i actually have guillian-barre syndrome!!! Very scary thing for me being as Im 26 yrs old and have the rest of my life to not only worry about my constant chronic back pain but now this! Thank you all for your comments and help. Going to the Dr. was the best thing i could have done in that situation, this syndrome can kill me if not treated with IVIG.
  • stuartkneenstuartkneen Posts: 4
    edited 08/04/2014 - 12:46 AM
    The pain you are going through is a combination of nerve pain and back -butt pain..this has made things worst for you.Get a spinal chord test done for you..to check if everything is well with the spine and not affecting the back.
  • Hey Courtney,

    I'm sorry to hear of your diagnosis but at least you know what's going on and can be properly treated. I hope the treatment is successful in reducing your symptoms.

    Thanks for the reply Cory. Do you still have the implant in? Was anything done for you scar tissue besides injections? I also have a severe amount of scar tissue around and throughout the 3 levels worked on during my most recent surgery. It's encasing a couple of nerves but there is too much to do anything about it. On top of that my L5-S1 disc re herniated for the 3rd time. Now that I'm bone on bone a Fusion was recommended but I'm trying to avoid it if at all possible. My goal is to get the nerve pain controlled and try to manage the back pain until my vertebrae fuse on their own.
    Progressive DDD
    Chronic S1 Radiculopathy
    Discectomy L5-S1 2002
    Discectomy, Laminotomy/Foraminotomy L3-S1 January 2014
    Bilateral SI Joint Fusion and 2 level spinal Fusion October 2014
  • No they only have you wear the trial stim for a week, they put in the leads temporarily and suture on the outside a couple times
    to help hold them in place, but as you bend and move around you cant but help move them a little in and out , just a tiny move makes a huge difference. They told me when they do the real thing they are sutured on the inside and dont move at all after they heal. For the trial a whole roll of tape holds the wires down and the unit is a belt clipped tens unit.
    Be prepared to take a weeks worth of sponge baths and be really uncomfortable with all the tape and crap...
    For me the pain i was feeling was still there but it was kind of masked by the buzzing of the tens unit, probably if i had the real thing i could have found the best frequencys and patterns to make my pain almost invisible but as i said before i wasnt ready to say this was it, there were other things to try, i dont want to have pain forever!
    No on the scar tissue removal, no dr has ever offered that as an alternative. they havent ever, until this last epidural at S2S3 on the sacrum done anything that has helped...i had 1 week of way less pain then 2 weeks of way more pain and now its calmed down and is back to less pain (than normal) So im hopeful that after 31/2 years i MAY get some relief...fingers crossed!
    Your situation sounds much worse than mine and im so sorry for that......I think the Stim would help, really.
    Did you have an accident or was it just a crappy roll of the dice at the beginning like mine?
    Ive never heard of vertebrae fusing themselves?
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