I am just wondering if there are others who have the diagnosis of Cauda Equina Syndrome? The pain,nerve damage and changes it causes in our daily lives. I would like to find people in US who have experience with this diagnosis and are willing to share in hopes it will help others navigate there care. I personally have been given the challenge of learning how to deal with the affects of having CES, and I am learning as I go. I believe many health care providers don't know a whole lot about it either making this quite a bit more challenging. I would love to see a support group form. Where others can get the need praise they need to keep going or simply find out the pros and cons of diff. Meds.