Well first post after lurking awhile.
I do not really want sympathy, rather advice on my next steps.
I am a 55 male and was miss-diagnosed at 25 with Marie Strumpells diasese, and as time went on i stayed active to lower pain.
In 1994 i fell onto my buttocks ( thanks Forrest, Forrest Gump) when i herniated L-5. I went to local hospital where i was given an esi blind.
It worked for a while, went back for the series of 3 esi that was my Doctors orders, #2 esi, the needle was causing more pain than i already had which i told physician that's in the wrong place it hurts more, to which the reply was "shut up & hold still!"
that caused my r leg to instantly develop sciatica. 4 injections later same physician messed my left leg the same.
I have had 15 esi's, a coddles, facet injections under fluoroscope.
I currently have S-1, L-5, L-4, L-3, & L-2 herniated, muscle seizing pulling me off plumb and twisted, with Degenerative Disc Disease, sciatica down the back of both legs with 1000's of hot needles in the bottom of my feet, and good ole Arthritis on top.
Been to neurologists, had nerve conduction surveys, 4 surgeons, the last a month ago who told me what the rest have said, i am not operable. He said he could put a cage on my spine and screw each vertebra to it but it would be 80% bad, 20% good and would not recommend the procedure .
I went to a PM clinic that do the rfa procedure, and felt like i was in a meat mill, not a place of care, where i had a bi-lateral SI injection.
Upon getting off the table i noticed my legs were not working right, R foot pointed to L foot and walked like i had cerebral palsy according to my nurse girlfriend.
The nurse stated "you look like you need a wheelchair", i replied you are the nurse, "well walk back to the lobby and wait 10 min before you can leave".
I could not walk right for 4 days. When i called them they stated "well you were not walking good when you got here", but they did not see me arrive.
I have taken all the n-said, all the re uptake inhibitors, almost every opioid, the pills that worked i was taken off of by my primary as you all know the druggies are making it hard for us all!
Not comfortable with RFA, Or Pain pump procedure, my Primary has me on Hydrocodone with soma.
2 years ago this month my pain factored up by half and i went to see him. Could not stand, used cane, was twisted and bent left severely and asked for a different drug therapy as i was miserable.
He said no that i would just be in 6 months later asking for more powerful meds than i switched to, and did not even order an MRI.
so in the last 2 years my activity levels have gone down hill immensely. pretty much house bound, couch, bed, and pacing.
To be honest in the last year i have taken more meds than prescribed, i own that, that was my way of trying to head off the pain, it did not work.
My area does not have a surgeon, a pain management center, so everything is 4 hour round trip which i can not afford.
My primary is covering his you know and refuses to give me anything stronger.
He says it is wrong to ramp up my meds.
I really do not know what to do as i feel like i have jumped through every hoop, and taken every drug handed to me, and lets not talk about the side effects, went to every Dr, and surgeons, MRI's, CT scans, PT guy had me lifting 2500# every visit as "its good for you" felt worse after than when i got there, also did the snake oil spinal decompression, the works.
Mind you this has been a 20 year process, and i am done.
I do not want to Dr shop, and most of the pm centers do not want to prescribe.
I would like to have part of my life back.I feel like the medical system is broken, and i am just a number, and pay check.
I do not want to live the rest of my life house bound, and in severe pain.
If any of you can give advice, i would be most grateful!!
Also i must apologize for the length of this post, i was trying to get all the pertinent info in it.
G, also known as river rat