hello everyone. thank you for the forum. I'm not looking for advice, or interpretation of an MRI. just looking for others experience who have been in a similar situation.
I'm a 36 year old mum of a wonderful 2 year old. as you can see from the thread title my lower back is a mess. I have also recently been diagnosed with scoliosis at L5 S1 too. I've had ongoing back issues for years, but things really came to a head in January of 2013. since then, I've seen a spine surgeon (orthopedic fellowship trained), attempted a chiro, who viewed my MRI and said no way, PT x2, and pain management strictly for injections. last injection was 10/29. absolutely no relief, almost feel as if it were made worse. (I had a medial branch block).
for the past two years I've been battling back pain with radiating pain into both legs. worse on the right side. it's been managed with injections, and tramadol.
on 11/20, I had a frightening new painful symptom. my legs were incredibly painful, and felt as if they were weighted down. I could not walk. The back pain which resulted was excruciating. on 11/21, I was feeling a bit better, and drove myself to the follow up appt. with my PM doc. explained to him my pain. he was a little alarmed. went and viewed my MRI, came back and told me he remembered my back. told me I have a severe curve to my lumbar spine, virtually no disc at L5 S1 "hone grinding on bone" were his exact words. upon physical exam, I had trouble getting on my tiptoes, and could not go up on my heels. I would not let him twist me. way too painful.
he ordered MRI and follow up ASAP. went for MRI on Sunday. follow up next Monday.
so, had a brief respite with pain for that weekend. on Wednesday I spent four hours or so cooking in preparation for thanksgiving. woke up thanksgiving day unable to move. pain a 9/10. (back pain). this pain has continued and is still out of control. spent everyday since thanksgiving on the couch. getting up to move every 20-30 minutes.
called my pcp on Friday who assisted with some meds to get through the weekend as PM was closed. PCP made me promise to be seen at PM this week. (my PM is on vacation till Monday).
saw an alternate PM doc today who told me I have bone marrow edema, which is causing a flattening of the thecal sac. told me under no uncertain terms am I to do anything strenuous. I am to rest, go to pain management PT with TENS, take a six day course of prednisone. follow up with my PM doc on Monday.
I'm going out of my mind with pain. my husband and I decided together it's not safe for me to be driving. I've lost total feeling in my legs and dropped to the ground a few times. once when holding our son. (back in October.)
so I have some questions:
has anyone ever heard of bone marrow edema with a pars defect? what is that?
have you ever been on a short course of pred for inflammation in the back? (steroids make me mental. I'm nervous)
what is a TENS unit? is it worth it?
I'm so fed up with living like this. my quality of life is shot. I can't stand for more than five minutes without having to sit due to pain. I'm ready for a permanent fix - no more bandaids. sorry for being so long winded, and whining. thanks for sticking with me this long. I appreciate any and all advice or stories of similar experiences.