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Hi I'm new, my short story.

tommy22ttommy22 Posts: 2
edited 12/04/2014 - 3:29 AM in New Member Introductions
Hi I'm Tommy. I have a couple of congenital spine conditions that have recently taken their toll causing a herniated l5-S1..
Bertolloti Syndrome, degenerated L4, and a fused l4-l5 at the back of the discs (another congenital deformity).

I have spent most of my life in pain, I am only 26. Recently I saw a chiro and he torqued the side of my body effected by Bertolloti (my pelvis is fused coccyx, and sacrum on the left side, along with the two fused vertibrae in the back)

Well, my spine didn't move, he torqued me so hard I cussed out loud. The next day my left leg has gone numb, I have developed intense sciatica and severe weakness in my left leg, moderate weakness in my right leg. I've always hobbled a bit but I managed to ride my trail bike, and maintain a strength regimen of prison type body weight exercises. I've basically become borderline immobile overnight.

I have gone for two epidurals already, which are excruciating and I have the side effect of becoming drowsy/fatigued for around two weeks and sleeping up to 14-16 hours a day.

Never have I taken pain medication before, but I have opted a light dose of vicodin and a muscle relaxer..they allow me to tie my shoes in the morning and go to work, I'm still not sleeping more than 2 hours at a time and it's starting to take its toll.

Even though I am a legitimate patient I am stereotyped and shamed for taking Vicodin. The glares from the pharmacy workers, the way the pharmacist screams "NARRCCOTTICC NO REFILLS" across the floor at me in front of other customers who in turn stare, the automatic assumption and snide remarks from nurses at my spine clinic, the urine tests, having to go in person to pick up a written refill (come crawling back). It's horrible to be young and deal with this. The whole process is demoralizing and dehumanizing, no one gives a xxxx about us..at all. I've been contemplating expatriating to a more humane nation who will give me medical treatment and compassion, I could make it work.. I am STEM educated with a good resume.

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