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2 surgeries in one month feeling hopeless

shelsmom15sshelsmom15 Posts: 1
edited 01/01/2015 - 4:28 PM in Recovering from Surgery
I had emergency surgery on both right and left side of my back less than two weeks apart. Non-invasive. I'm now suffering from severe hip pain...worried about bursitis on both sides of back. My insurance has expired and now I am stuck. Hurts to stand up any sudden jolt is excruciating pain. Even rolling over in bed is awful and wakes me up in the night. Feel pretty hopeless at this point. Tired of the pain....all the time.


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  • - When did this first start?
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Also please remember, there is no one on this forum site that is a medical professional. Therefore, no one can provide you with a diagnosis of your problem. You need to discuss that with your doctor.

--- Ron DiLauro, Spine-Health System Moderator : 01/01/15 22:28


  • Hang in there. I don't know what kind of surgery you had done, but it does get easier. I've now had two minimally invasive microdiscectomies, one single level minimally invasive spinal fusion with screws and rods and a minimally invasive "revision and removal" surgery just 5 days ago to try to improve some problems I've continued to have with my left foot. All of these surgeries have happened since May 30th, 2014.

    It's been a long year and it's easy to get discouraged. I still have nerve pain (likely from permanent damage) in my left foot and currently the stitches in my back are itching like crazy. The weeks after my fusion were not fun. I slept on the couch (and I use the word "slept" very loosely) for months. I completely understand how hard it is to roll over, or climb a flight of stairs or just find a comfortable position. I have been there/done that and then some. I walk with a cane now and even putting on my pants is harder than it used to be.

    All that being said, I am not miserable and I think part of it is a daily choice to make the best of the situation. That's REALLY tough when you're in pain, and if you'd found me less than 6 weeks after my fusion, when I was sleeping a couple of hours a day and not well at that, I would have sounded a lot less positive. But now that I am about 3 months past that "big" surgery, I can see that life will (and must) go on, and how I choose to respond to the challenges will determine how happy I am. I choose not to be bitter, which would be the easier thing since I don't really want to be the 36 year old mom of a 10 and 5 year old who walks with a cane and has a permanent disability. And I absolutely admit that some days I let myself wallow (or grieve what could have been) but then I have to pick myself back up and move on with life.

    Things will get better and easier for you, but you just had big surgery (because even minimally invasive back surgery is big) and you need to give yourself more time to heal and adjust. Time help but until then focus on the good things in your life (I promise there are some) and keep reminding yourself that it WILL get better.
    Left leg radiculopathy/sciatic pain
    L5/S1 microdiscectomy - May 30, 2014
    L5/S1 microdiscectomy - Aug 14, 2014
    L5/S1 TLIF - Sept. 24, 2014
    Left-side screws/rod removed along with bone fragment Dec. 29, 2014
  • Hi shelsmom15, I'm in pain 24 hours a day for the last 7 years. Hang in there and do your rehab. Coltsfan 78 has great attitude. Read my story, it may help.
    Well here's my story. I am 49 years old and am male. In 1985/1986 I had 2 laminectomis to remove herniated disc, c5 c6. I was fine until 2005. Hands started burning. Went to Dr, got MRI and he said it looks like u need c5c6 c7 fused. So I had that done. It was done from front of neck.
    2007, my hands were burning again so went to Dr and got MRI, he said looks like scar tissue has formed in previous surgeries. He said he can remove it but would have to go through the back of the neck like 1985/86. I said OK. He said I would be home in 2 weeks. Boy was i and he in for a surprise!! ¡!!!!!
    He opens me up and sees tumor, nuerofibroma schwannoma that is about 3/4s of an inch and has penetrated the spinal cord dura and the spinothalamic tract of the cord , which by the way there are only 15 cases where that has happened !!! Oh boy !!! Now its a 9 hour emergency tumor removal. I wake up, excruciating pain. Can't feel or move legs. After 1 1/2 weeks in ICU, they transfer me to level 1 spinal rehab where I lived for 1 year. Legs finally started to move an inch after 2 months. Long story short, took 6 years to learn how to walk again and I'm proud to say that I went from wheelchair to walker to 2 canes to 1 cane and am now cane free. I still have diminished propripception but no where near what it was when I started to learn to walk again. Now I have permenant damage to cord. I suffer from sciatica in both legs and feet. Hands still burn too. Now I have seen posts on here where people say you can't have sciatica from neck, OH YES you can if cord is damaged. Dr said tumor removal damaged the sciatic pathways in the spinothalamic tract in cord at c5 c6. I been to 6 other drs and they all agree, yes you can and I am proof of that. I've had MRI to check rest of spine and the rest is fine. Thank god!!!!. Now yes the pain is bad but I am on nuerontin, 3600 mg a day which is a very high and dangerousy dose but at least I'm walking !!! Drs didn't think I would walk again. I proved them wrong! Now listen to how rare this tumor is, all drs said that for nuerofibroma schwannoma that penetrated the spinal dura there are only 100 recorded cases in the history of this and I am 1 out of the 100. Now listen to this. !!! I recently met a women in hospital that had same exact tumor also penetrated the dura hers at t12. Now we are 2 out of the 100 recorded cases in the history of that. That is amazing!!! We will now be friends forever!!! I have been through allot but my grandma always said, " there's always someone in the world worse off than you". And she's right. Even though I am in pain everyday 24 hours 7 days a week with no break. I am walking and I met a wonderful woman who knows exactly what we go through every day. When there are people who will never walk again !!! Grandma you are right!!! I thank god for what he's done for me and pray for those less fortunate than me. To all spinal cord sufferer's, even though things may not be good for you like me and the woman I met, keep your chin up , there's always someone worse off than you. I witnessed it I live it everyday. If I can help anyone here feel free to ask.
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