Hello everyone. I’m a 35 year old male. I'm new so here's my story...
In early 2013 I had penis numbness/zapping, urinary deficit, ED, and foot/lower leg numbness/zapping come on suddenly over a few days. I saw my doctor and she ordered a spine MRI with and without contrast. At that time the MRI showed slight L2-L4 disc bulging and an S2 hemangioma. The MRI ruled out cauda equina syndrome. I later had a brain MRI ordered by my neurologist that did not show any abnormalities. No diagnosis was made at that time. I’ve been living with the urinary deficit, penis numbness, and ED for the last two years. I’m unable to “squeeze off” after I pee. This leaves residual urine in my urethra that I manually remove by pushing on the perineum. The muscles in my perineum are weakened.
In 2013 I saw a urologist and all results returned normal.
In mid 2014, my neurologist proposed blood glucose sensitivity as a cause. All my blood sugar tests have returned normal however.
Now in 2015, I have a recurrence and worsening of penis numbness, some numbness/buzzing in the legs, ED, increased urinary deficit, and a dull lower back ache. I spoke with my neurologist and he didn't recommend any further tests. He now has me taking Nortryptiline.
I have questions that I don’t feel my neurologist covered or researched adequately: Could the S2 hemangiona be causing these issues? Should I ask for a referral to a pudendal nerve specialist? Why would these symptoms have originally come on so suddenly?
What do you all recommend? I understand there are no medical professionals answering questions here.
Thank you and good health to all.