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Groin Numbness, Urinary Deficit, ED, Lower Back Pain

JF22JJF22 Posts: 2
edited 01/30/2015 - 8:48 PM in New Member Introductions
Hello everyone. I’m a 35 year old male. I'm new so here's my story...

In early 2013 I had penis numbness/zapping, urinary deficit, ED, and foot/lower leg numbness/zapping come on suddenly over a few days. I saw my doctor and she ordered a spine MRI with and without contrast. At that time the MRI showed slight L2-L4 disc bulging and an S2 hemangioma. The MRI ruled out cauda equina syndrome. I later had a brain MRI ordered by my neurologist that did not show any abnormalities. No diagnosis was made at that time. I’ve been living with the urinary deficit, penis numbness, and ED for the last two years. I’m unable to “squeeze off” after I pee. This leaves residual urine in my urethra that I manually remove by pushing on the perineum. The muscles in my perineum are weakened.

In 2013 I saw a urologist and all results returned normal.

In mid 2014, my neurologist proposed blood glucose sensitivity as a cause. All my blood sugar tests have returned normal however.

Now in 2015, I have a recurrence and worsening of penis numbness, some numbness/buzzing in the legs, ED, increased urinary deficit, and a dull lower back ache. I spoke with my neurologist and he didn't recommend any further tests. He now has me taking Nortryptiline.

I have questions that I don’t feel my neurologist covered or researched adequately: Could the S2 hemangiona be causing these issues? Should I ask for a referral to a pudendal nerve specialist? Why would these symptoms have originally come on so suddenly?

What do you all recommend? I understand there are no medical professionals answering questions here.

Thank you and good health to all.


  • LizLiz Posts: 7,832
    edited 01/30/2015 - 8:50 PM
    Welcome to Spine-Health

    Use that above hyperlink to help you get started with Spine-Health and navigate through the system.

    If there are any questions, you can always post them here, send Liz or myself a private message or contact Ron rdilauro@veritashealth.com

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • itsautonomicitsautonomic LouisianaPosts: 1,804
    Had similar but I couldn't hold my urine or bowels very well. Mine originated after neck injury that drs think had cord contusion and I also have small finer neurapthy and autonomic dysfunction . Anything dealing with that for a young man like yourself is scary., did the doctors say that can just happen for no reason in your case?
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • Thanks for your reply.

    My doctors don't seem very concerned. I'm doing daily research to find a cause or a specialist. Some possible causes I've found are pudendal nerve entrapment, the S2 hemangioma I have, or pelvic floor weakness from long-term constipation. It's amazing how much this affects my happiness. It's hard to find any joy at this point with a non-functioning penis and decreasing muscle strength in that area.

    Good health to you.
  • Hey man this is a long shot but I am reaching out to you to let you know that I have the exact same symptoms as you do and would like to discuss this with you.  I hope you check this site for messages
  • guit30guit30 Abington,PaPosts: 14

     I have cervical stenosis. spinal stenosis, and now developing  scoliosis . I have had problems with my prostate for years, More recently I have been more incontinent and have been wearing diaps at night. When I wake in the morning, I usually have a strong urgency to  urinate, sometimes, I have no control and wet my diap on the way to the bathroom. It is frustrating, and I also have lots of trouble walking, needing pain. I would be glad to discuss this with you privately, but I do not see a way to leave a message on this board.



  • Guit30--if you click on the member's name, this will allow you the option to send a private message to see if he is still on the forums.

    Please check in with your doctors about these symptoms.  Sometimes, numbness/urinary issues/erectile dysfunction can indicate the presence of a serious problem like Cauda Equina Syndrome--and the earlier the intervention for this particular condition, the better the patient outcomes...

    I wish you both well...
    Kimmy72, Spine-health Moderator
    Firm believer in PMA!
  • SooveritSooverit Finger Lakes region of NYPosts: 459
    Hi jf22,

    I am a female who has recently been tentatively diagnosed with pudendal neuralgia. I am not sure this is really my problem, but I think it could be yours. 

    Please, please look it up and suggest it to your neuro. There is a diagnostic injection that can confirm or rule it out. I have mine in September. 

    Sorry you are going through this, and I hope you get answers and relief very soon. 

    Take care, 
    Sara :) 
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