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Another Newbie Joining In

Hollykins2HHollykins2 Posts: 1
edited 03/12/2015 - 6:06 AM in New Member Introductions
Hello all!

I've been lurking for a bit as I have been reading all the Forum Rules, the FAQ's and articles. I then have been reading many of the posts, which has helped educate me quite a bit.

I'm a 62 year old female. Disabled from Meniere's Disease and post vestibular neurectomy in 2010. (cutting of the 8th cranial nerve) I had a severe case of Meniere's with drop attacks and attacks several times a week. The last resort was the vestibular neurectomy (VNS.) Fortunately that completely stopped the drop attacks, and violent vertigo. I still get attacks, but they are more like episodes. I never fully regained my balance after that surgery. Well actually it had started getting better, but over a year ago my balance really started regressing.

The reason I am adding all of that is that I have long been blaming any symptoms that started arising in the last year to two years on the Meniere's. They just started creeping up and I took them as all separate things. (arm, shoulder, leg, hand, etc.) I also knew that I had hip and back problems from an MRI in 2009.

I have extremely bad balance and fall often. I have gone from using a cane occasionally to mostly using a rolling walker. (a rollator) I blamed that on the Meniere's and my vestibular system. Am actually on a waiting list for a balance/brace service dog.

Then I started noticing other things that as they've happened have progressively gotten worse. My hands, especially the left side didn't seem to work right. Fine motor skills are getting more and more difficult. Shooting pains in my arms and legs. My left foot does something "funny" where it goes the wrong way and I stumble over my own feet. Bladder/bowel issues. Shoulder pain and lack of mobility. Some neck pain. Most of the pain is in my shoulders and arms, and my hands are often numb and prickly. Get muscle spasms in the left rib area. Actually my back hurts far worse if I overdo - like stand or sit for too long.

To keep this from getting too long - I've been on the hamster wheel with doctors and insurance companies. I'd switched doctors because I finally got an insurance where I could see a doctor I trust. He took my symptoms seriously and sent me to a neurologist many, many months ago. I was concerned I might have MS or something.

He wanted to do a brain/c-spine MRI. Got the brain one, but my insurance company kept turning down the c-spine. Since my symptoms kept getting worse, especially with a pronounced wide gait, and his getting on the phone personally with them - I got the c-spine MRI and another brain MRI. This probably took five months or so.

Fortunately the brain MRI came out good both times. However, the c-spine did not. He is referring me to a neurosurgeon. Apparently I have issues from C-3 to C-5 ranging from moderate to severe narrowing. Both the forminae and the spinal cord. Have several bulging discs and one that is herniated.

So I am at the beginning of this journey if there is indeed problems that need intervention. As I've not seen the neurosurgeon yet as I have to wait for the insurance company to approve it.

I am here researching and hoping for the best and that the MRI isn't as bad as the neuro said it was.



  • LizLiz Posts: 7,832
    Welcome to Spine-Health

    Use that above hyperlink to help you get started with Spine-Health and navigate through the system.

    If there are any questions, you can always post them here, send Liz or myself a private message or contact Ron rdilauro@veritashealth.com

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
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