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4 level ACDF gone awry

I don't even know where to start. I had my surgery on Thurs. Before I was extubated in recovery, I had some kind of "major cardiac event," and my lungs started to fill with fluid. I was intubated for about 28 hours while they worked to stabilize me. The echocardiogram showed my heart was only working at about 20% of the fraction it should have been. A heart cath and revised that up to 30%. I spent six days in ICU and just moved to regular room yesterday. I know mine is an unusual result. I know most people walk out of the hospital ready to recover and I know how much I scoured for positive stories, and how much I wanted to be one. Instead, I think my story will have to be a warning. Those things they tell you about that can happen, do happen. I am forty-three. I walked in to
the hospital in perfect health. When I leave it will be with cardiomyopathy, a life vest, which is a wearable defrilbillator, because I am at greatly increased risk of Sudden Cardiac Death, 3-4 new prescriptions just for cardiac, activity restrictions , etc I don't know how my neck will heal, but that seems so much less important than it did a week ago. My family has been through more in this last week than they should have ever had to. My husband had "the talk," with the intervention team, in a private room, to let him know things didn't look good. I can't imagine his heartache and fear during those hours. As each of you get ready for surgery,
I wish for you a much easier road than this has been for me. Listen to that still small voice. Mine wash telling me to wait, but because the loss of function scared me most of all, I decided to move forward. Do, listen to yours. Best of luck to everyone.


  • My heart goes out to you and your family. Wow! I will be scheduled for a similar surgery very soon I hope. This story definitely opened my eyes more. I wish you a speedy recovery from both issues. Please keep us posted on your progress. I can't speak for everyone, but I know there are people who do care. Here's hoping things get better for you very soon.
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