I've never started a topic before so I may be totally wrong but I don't know where else to put this.
Has anyone ever been given the diagnosis of Chronic Intractable Pain and then, later been told that the diagnosis no longer fits, more optimistically, that you're cured?
Long story quick as I can tell it. In 2010 I was diagnosed with congestive heart failure and was told I had an optimistic 7 years if I did not get a transplant. It was an incredibly dark time and I was in a new city and life sucked. But I also was feeling crappy with every food I ate so my doc ran a few blood tests- I had tested positive for the Celiac antigen. In a year I ate NO gluten (I still eat no gluten) and I went to a new cardiologist. (The pervious one set me free to make a long story short.) The new cardiologist said I had no signs of CHF and my heart muscle was fine. I showed him the old tests and he ran (on his own dime too) all new tests. Nothing. My heart had been reacting to gluten, had an arrhythmia, and a EF of 25%. Now, 5 years later my heart and lungs are still near to normal or normal. So I have learned to hope for miracles.
Definitely my pain levels went down when I got off gluten. (I had always had an achy feeling.) I've broken many, many bones and we know it was because the Celiac Disease prevented my gut from absorbing calcium, potassium, and Magnesium. While those minerals are important to our heart they are major in bone maintenance too. And no amount of eating correctly has taken away all the pain; the pain just continues to worsen.
I guess I'm dreaming of a reliable treatment, studied by medical researchers, tested on humans, proving that Chronic Intractable Pain isn't a life long sentence. I'm really tired of it already and it hasn't had a name for all that long for me. Thinking of a future alone dragging a locked safe full of narcotics is scary.
Two roads diverged in a wood, and I took the one less traveled by...... (Robert Frost)
I still don't know if I should have taken the one that said, "Caution! Dead End" (Me)