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WendylynnWWendylynn Posts: 2
edited 04/03/2015 - 9:55 PM in New Member Introductions
I had an ACDF 3 yrs ago and I now suffer from chronic pain. I see a wonderful pain management doctor where every 3 weeks he gives me 6 lidocaine shots and every 3 months I have an epidural done as well. I am also on numerous medications to help with pain, sometimes they help other times not so much. My pain is in the back of the neck, right side of neck, right shoulder blade, right collar bone area and down my right arm. I came across the site by being directed here through Facebook to read a letter about dealing with chronic pain, and after looking through some comments it was so great to find you guys! Having people who are going through chronic pain and being able to reach out to them makes me feel that I am not alone in this. I am really looking forward to being part of this forum.

Thank you


  • LizLiz Posts: 7,832
    edited 04/03/2015 - 10:03 PM
    Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
    Here are just some of the highlights that are available as tabs on the main Spine-Health menu bar

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    As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family[/u] who provide comfort and the advantages of a support system. You are now part of this family that is approximately 27,00 international members and growing daily.


    - It is very important to understand the Forum Rules to make sure all of your posts[u] do not violate any of the rules.[/u]

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    Doug Hell

    Also working with us very closely is Allison Walsh from the Spine-Health company


    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • Motor1MMotor1 Pittsburgh, PaPosts: 556
    I had 2 neck fusions two years ago & I also suffer from chronic pain as a result. I had one anterior & 1 posterior fusion surgery. I am now dealing with pain in my neck & into my left shoulder & arm. My arm is very weak & I've lost a lot of muscle tone. It's hard to try to strengthen it, not only because of pain, but I have a 10lb weight restriction. It's very frustrating. I've been told I'll never work as a nursing assistant/Hospice aide again. I've done that work for over 30 years, so I'm very sad about that. Mine was a work injury. How did you get injured? You will find lots of great information & great people here! Welcome!
  • I am so sorry to hear about your pain, and thank you for welcoming me. I to have a weight restriction of 10 lbs, it does make it difficult to try to strengthen the arm, I am right handed and as this is all on my right side it can make things very difficult at times. About 31/2 yrs ago I started having arm pain and a tingling sensation in my right arm, the symptom kept getting worse and my index finger and thumb started to go numb, I went to the Dr. she ordered a MRI and turned out I had pinched nerves caused by a fragmented disc, I was then sent to a neuro surgeon who recommended surgery and unfortunately after surgery I ended up with permanent nerve damage and have been told that I will suffer from chronic pain the rest of my life and was referred to a pain management doctor, who is great. It has been a difficult 3 yrs as I too am no longer able to work, I was an admin assistant at a museum and loved my job, it was very depressing to have to give that up.
    This site looks to be very informative and I look forward to being a part of it. Thanks again for the welcome Cathy!
  • Motor1MMotor1 Pittsburgh, PaPosts: 556
    I'm so sorry your doctor told you that you will be in pain for the rest of your life. Im curious what kind of treatments has your pain doctor tried to help aliviate some of your pain? I have tried therapy several times. Also had several injections. I use a TENS machine at home. I've heard people on here say that massage therapy helps them, but my problem with that is, my pain runs into my shoulder & arm & it hurts to just touch it? Also, I am very ticklish. I once tried a massage before I was injured & I had to stop it after 15 mins. It was awful. I have an appointment on Thursday this week with a new pain doctor. I just feel like the one I'm seeing right now isn't on the same page as me? He seems to just keep throwing meds at me & doesn't care what side effects I'm having from them? I am on 1800mg of neurotin & it doesn't seem to be working as well anymore. Plus, I hate the side effects. Besides the weight gain (ugh), this med has changed my whole personality! I'm not myself. Im always confused & I have a hard time with simple thought processes. I can't think of simple words when I talk? He had me on amitryptline before the neurotin & the side effects were horrible. I was having hand/arm tremors. He didn't care. It took my therapist calling him to say that my tremors were affecting my ability to perform well in physical therapy for him to agree to change my meds.
    Sorry to be so long winded.
  • Welcom to spine health
    I hope you find some answers your looking for here..
    Its a long way sometimes to an answer but the journeys worth it
    William Garza
    Spine-Health Mod

    Welcome to Spine-Health

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