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fibromyalgia pain

fibropain76ffibropain76 Posts: 3
edited 04/22/2015 - 7:11 PM in Fibromyalgia
Hi I'm new on here and havea few questions about my fibromyalgia pain I am currently on 10 milligram vicodin which is not helping first I was on 5 milligram oxycodone HClevery 4 to 6 hours with gabapentin flexeril,.fioricet abilify and klonopin I went to my doctor and asked if he could up my percocet 5 milligrams instead he gave me vicodin 10 milligrams he said due to insurance issues that I have to try that first before he can up my percocet does anyone know how I can get the percocet back and get 10 milligrams instead of the 5 milligram or maybe keep the Vicodin 10 milligram and get then percocet 5 milligrams for breakthrough pain any answers will help thank you
Fibropain76
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  • LizLiz Posts: 7,904
    Please take the time to read this post and refer to it when you have questions

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  • itsautonomicitsautonomic LouisianaPosts: 1,950
    fibropain76 , could you describe the criteria they diagnosed you as having fibro with? Tender points , the new system etc.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • SavageSavage United StatesPosts: 5,940
    .....what he is able to do.
    You don't say how long ago you changed meds or why? Meds can take quite awhile in system before feeling benefits....depending on each individual.

    Doctor may want you off particular med and try another....so you can go back to original med if need be in the future...and you would not have built up a tolerance.

    There are no magic words or symptoms to display to get what you want.
    Open communication with how you are feeling is best. If you don't like doctor or trust him...maybe you want second opinion.

    Best of luck with your pain control.
    Sue
    Spine-Health Moderator
    -------------------------------------------------------------------------------------------------------------------------
    Please read my medical history at: Medical History

  • I was diagnosed with fibromyalgia about three and a half years ago diagnosed by tender points a lots and lots of blood work to our other things I was a been on 5 milligrams ever since I tell my doctor they weren't working too good anymore and that was about 2 months ago I'm on my second script of 120 almost gone. they don't help my pain at all or even ease my pain so at this point I think I just want what I had back if he's not going up me to the 10 milligrams of percocet my doctor is really nice and understanding with all my problems which is other stuff besides fibromyalgia that is the worst soI go to the doctors on the 7th but I don't want to seem like seeking narcotics I don't know how to go about this thank you
    Fibropain76
  • sorry the way that is I use text to speak because my fingers hurt and I didn't check it before submitting it
    Fibropain76
  • itsautonomicitsautonomic LouisianaPosts: 1,950
    edited 07/26/2015 - 1:18 AM
    Its ok, I am a big pusher to be checked by a fibromyalgia expert because I heard fibromyalgia several times then saw a specialist and he ruled it out. Sure enough it was a condition called autonomic dysfunction and small fiber neurapathy ,, very hard to diagnose took 3 years but fibromyalgia has autonomic components and some of the largest hospitals in US are now thinking fibro pain is actually caused by the small fiber nerves. I found the diagnosis of fibromyalgia vs. a condition that is testable to confirm makes huge differences in way i was treated by doctors. But if you have a good one I am glad for you. Good luck with everything.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • Hi itsautonomic! I am also a fellow Fibro patient here....... although I do see that you have something different. my Fibro is just one thing I deal with as well as Post Polio Syndrome, Severe Osteoarthitis etc etc..... the list is long! I was diagnosed with Fibromyalgia 15 yrs ago give or take back in the beginnings of our increased knowledge of the disease! I was fortunate in having a Dr that knew what it was and how to properly diagnose it back then!! I pretty much ended my 18 tender point test in tears and felt like they all hurt too!! then my blood work ruled out anything else. So what I'm curious about is that after you mentioned those particular tests you say something about the " New System"? Since being diagnosed and the long long road to finding any relief...... let alone any doctors that were sympathetic to my suffering .....I've long since eased up on googling and seeking info about Fibromyalgia so am a bit behind the times I guess is what I'm getting at and I'm not familiar with any "New " methods of diagnosing the disease. So would you mind telling me about the New System that you referred to? I'd really appreciate knowing about that. Even though my focus moved to more pertinent issues for myself I am interested in keeping abreast of new info as best as I can so I thank you for any info you'd be able to pass along :-)
  • itsautonomicitsautonomic LouisianaPosts: 1,950
    edited 07/26/2015 - 1:18 AM
    Yes from what I am being told the 18 point system is being pushed to the side for a checklist type system for symptoms. Another development is that autonomic and small fiber testing should be mandatory for anyone diagnosed with fibromyalgia along with all the other testing they usually do. The studies are in the early phases for " official testing" but on some of the smaller scale testing 70-80 percent of fibromyalgia patients actually had small fiber neuropathy. It's a very simple test, the autonomic testing is something more difficult.
    I also deal with severall issues not just this.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • itsautonomicitsautonomic LouisianaPosts: 1,950
    I did not say Fibro fog in any part , second Fibro fog has been around for quite a while , it's not as if the word came out this year. I heard it 3 years ago from a doctor and I know it came out before that.
    Lorelei2u this is off a fibromyalgia site and does a bit better explaining and it says came out in 2010.

    What the new criteria do require is that a person have at least seven “areas” of chronic pain along with symptoms of sleep disturbance, fatigue, and fibro fog (look it up online or read what dilauro posted) The symptoms have to have been present for at least three months. A variety of other symptoms that occur in people with fibromyalgia are also part of the official criteria. In addition, a person must not have another condition that could explain the symptoms.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
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