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Help I just had fusion

ShandafaymSShandafaym Posts: 1
edited 07/08/2015 - 3:51 AM in Recovering from Surgery
Hi all, I am just a couple weeks out of lumbar spinal fusion also have scoliosis and have the rods and screws installed in the L45 S1. I guess I thought I was stronger. I'm married with older teens and I believed that I would have help in recovery but as it turns out I dont. So I am alone in this journey. I will love any advise you can give me. I am working with the bare minimum sorry to complain but I am so alone, I wake in the nite with pain from surgery alone. I live in an Apt with alot of stairs so it's hard walking. Eating is hard because I dont have the big appetite and I was the cook so I dont eat what the family eats and my husband says we cant make two different meals, I lost alot of blood but I dont have vitamins and insurance wont cover. Please any advice on how to heal. Lastly I tell my husband he is kneeing me in my back when we sleep but he refuses to sleep on the couch should I just sleep in my brace? Thanks for your time.


  • LizLiz Posts: 7,832
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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • I am a single mom of a young adult with mild autism. I absolutely cannot imagine what it would have been like without my mom here. She stayed with me the first 2 weeks. If someone would even bump into my bed, it would have been in horrible pain. I wouldn't even let my dog sleep with me. I hate to sound mean, but that is BS that your husband won't sleep somewhere else. That just shows he has no clue what you are going through. Those first two weeks, I was well taken care of. After that, it got really frustrating. Me & my son, ugggh. He did most of what I asked, but not without constant grief. My son has never really got the concept of cleaning up after anyone else. I don't know what exactly I am trying to say, just that I know it must be horrible and I feel for you. :)
    Posterior Lumbar Interbody Fusion (PLIF) Surgery (Open) L2/L3 (23Mar15)
  • I don't think you should sleep in your brace. I don't think I could sleep in mine. If you can't kick him out of the bed, maybe you could get someone to pick you up one of those body length pillows. to put between you two.

    I couldn't eat much for a month or so after surgery. You are supposed to eat lots of protein. I drank these mix up protein shakes from GNC. It mixes with milk, so I got protein and calcium both. I know that it is also expensive though.
    I ate a lot of soup, some fruit, raw carrots,... Stuff I could just pick up and eat anytime. Maybe he can pick you up a few things like that.

    That is horrible you have steps. I used my walker about a month and I sure didn't go down any stairs. I wouldn't go out there by yourself either, to be careful. Getting up and moving is more important that you know. Even if you are just walking room to room in your apartment.

    You still need to go by the no bending, lifting or twisting rule for several months. It's hard to get used to, but it's important. Hopefully you have or can get one of those grabber things like old people use to pick up things.

    I'm sorry that most of my suggestions cost money, but I just can't think of any alternatives. Please just try to keep your mind as positive as possible, no matter what. That is one of the things that is going to get you through this. :)

    Posterior Lumbar Interbody Fusion (PLIF) Surgery (Open) L2/L3 (23Mar15)
  • WeritaWWerita Posts: 1
    edited 07/10/2015 - 1:21 AM
    I am two weeks post op for L2345S1 fusion. I also have scoliosis. 3 years ago I had a double mastectomy for breast cancer so I have. Been in my bed forever. I am lucky that I have a very patient husband who does everything for me. He works on the off shore oil rigs and is home for a month and gone for a month....he leaves on Wednesday. I am terrified I can't walk well. Can't wipe my nether parts and haven't even tried to go down the stairs yet.i will live on sandwiches I guess. I have lost 30 kilos and am 10 kilos under my suggested weight. When I walk it is like I have a dropped foot and everything hurts like the dickens unless I take tramadol and then everything is too lovely. I just want to get over this and get on with my life. Will it ever end?

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  • b.logginsbb.loggins Posts: 4
    edited 07/19/2015 - 6:34 AM
    I suffered a lot of blood loss as well, and my doctor put me on iron pills. If your insurance won't cover something like that, maybe you could look at some over-the-counter iron supplements?

    As far as feeling alone, you should really consider some kind of counseling. I truly believe that counseling can help anyone in life, even if they appear to be someone with hardly any problems. You could also just talk to your doctor about all of this. Even though they're not exactly counselors, they deal with people just like you all the time, and I'm sure they would have some great advice for you.

    As far as sleeping goes, I agree, invest in a body pillow.

    Good luck with everything. I know the recovery process can be difficult, and I know it's hard to be happy when you're cooped up inside all day. Things will get better, and one day, this will just be something that made you stronger.

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