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Spinal Cord Stimulator problem

bubbe1bbubbe1 Posts: 1
edited 07/17/2015 - 3:11 PM in Spinal Cord Stimulation

Sorry for the long post.

This may sound like an odd question, but I'm hoping someone can help out.

My husband has had an SCS for 7 years(St. Jude), which he had implanted for lower back and leg pain, and for 7 years it worked perfectly and helped quite a bit.

One evening in May, he turned it off, as he always did when preparing for bed and he noticed that he was continuing to feel vibration,(this had not happened before). He was concerned but thought it would fade. He went to sleep and when he got up the next day, the vibration was still there.

Now very worried and uncomfortable, he called a rep who met him and attempted to shut the generator off. she was not successful though she swore there was no longer a program and the SCS could not be causing the vibrations. By Sunday,(two days later), my husband was miserable , so he called the rep again, who told him to go to the ER! Of course they could do nothing for him so they sent him home.

Later that day, the vibrations ceased. he spoke to the rep yet again and she helped my husband set up an appt. with a neurosurgeon, to change the generator.

Days passed and suddenly the vibrations started again(hub had not turned the scs on). Called Dr. who said, go to ER! Uh, no.

Spoke to everyone at St. Jude and finally found one person who said, tell rep to install a "ghost program" Rep did that, and the very low amplitude made it so hub didn't feel vibes any longer.

Hub had surgery,(diff doctor) to implant the new generator, the rep programmed it and all seemed well, but when my husband turned the SCS on, after about a week of being afraid to try and then turned it off, vibrations remained- again-for two days.

At this point, we don't know what to do as we've been told "that's impossible"

If hub was a stim newbie, we might think his brain just has to get used to the SCS, but again, he's had one for seven years and never had this problem.

Has anyone had this problem and if so, what was the resolution?

Thanks so much.

Welcome to Spine-Health

One of the most important things that need members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.

So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.

Here are some questions that you should answer:

  • - When did this first start?

    . Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)

  • . Which doctor did you start with? Ie Primary Care Physician
    . Who are you currently seeing?
- What Conservative treatments have you had? Which ones?

  • . Physical Therapy
    . Ultrasound / Tens unit
    . Spinal Injections
    . Acupuncture
    . Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)

  • . Summarize the results, please do not post all details, we cannot analyze them
    . How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)

  • . Name of Medication
    . How long have you been using this?
    . Results
- Has surgery been discussed as an option? (If so, what kind)
- Is there any nerve pain/damage associated?
- What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

Please take a look at our forum rules: Forum Rules

I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ There you will find much information that will

  • - Help you better utilize the Spine-Health system
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Please remember that no one at Spine-Health is a formally trained medical professional.
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As such, no member is permitted to provide

  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
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What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are

I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

Specific comments :

While you did provide us with some information, there is a lot more we need to know

Personal Opinion, not medical advice :

--- Ron DiLauro, Spine-Health System Moderator : 07/17/15 21:14 est
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