I'd really appreciate hearing from others trying to endure and live as best you can (a more monumental feat than a lot of people may realize.)
****So, I need help choosing an adjustable bed or sleep chair...****
About 7 months ago I traded my 18 yrs worn-out mattress for an Aero-mattress (it was bought as kind of an "audition" to see if a pricier air bed might be worthwhile, esp. the fact that it could be easily adjusted.) Being a side sleeper, it was more comfortable than a traditional mattress for roughly 1/2 of the time I sleep in a partially-upright recliner since it helps w/ the neuropathy/stenosis.
Then a night came when I just pumping up the bed caused a metallic/electrical smell. The next day it emitted a brilliant, Tinkerbell-green spark from the circuit board. With a wood bed frame, I wasn't taking any chances by using that bed again, so it was deflated for good.
The other day I bought another air mattress--as a temp. solution--from the same company (it had so many manufacturing defects that it had to be returned.)
It's been about 3 days w/o a bed and the conditions I have have been made 20 times worse, so I need to find something asap.
Multi-level, severe spinal stenosis w/ considerable peripheral neuropathy and possibly some demylenation. A MRI noted the cervical & lumbar involvement (at the time I was told I have the spine of someone 30 yrs older than I am.) An EMG in the last week noted the full-body nerve damage is much worse than orig. thought, esp. to my legs--it's particularly bad in my left leg (the typically unflappable neurologist asked me, "You haven't had spinal surgery?" probably 5 or more times. Apparently the left leg is much, much worse than the right. In general, my limbs have 3 sensations--very thick and numb, itching/hurting in considerable pain or a partially pain-suppressed version of one of these states. It's the kind of thing where I can't feel fire ants sting, I constantly bang my feet/legs into things b/c I've lost the ability to really sense where they are in space (resulting in breaking my feet a couple times), some joints are swollen w/ arthritis, other joints are degraded to being so loose that they require braces. I have severe migraines due to my R occipital nerve misbehaving (hopefully I can get that numbed soon. In general, my nerves act like they're de-mylenating as well as being pinched due to r.a. both building up bony spurs and compressing a fair share of discs. Most of my 10+ major health problems stem from autoimmune diseases such as severe, photosensitive lupus, r.a., sjogren's, raynaud's and more (rheumatologists say there's nothing they can do for me b/c the last rheumy did something that impaired my ability to ever get future care.) My heart's seriously scarred from all the inflammation and has trouble skipping beats, then erratically re-starting, multiple times/day.
I take medicines, incl. neuro medicines (which, my neurologist said he'd like to compliment with at least one more new neuro med.)
I've been disabled/unable to work for the last 11 yrs during which my health's worsened exponentially.
So, that's everything as briefly put as possible
****I really, really need recommendations, please, on either adjustable beds and/or a sleep chair to buy asap.****
Thanks so much for reading this and writing back if you have the time
I look forward to finding a solution *soon*
Take Care!********************************************************************************************************* Welcome to Spine-Health
One of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.
So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.
Here are some questions that you should answer:
- When did this first start?
. Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)
. Which doctor did you start with? Ie Primary Care Physician
. Who are you currently seeing?
- What Conservative treatments have you had? Which ones?
. Physical Therapy
. Ultrasound / Tens unit
. Spinal Injections
. Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)
. Summarize the results, please do not post all details, we cannot analyze them
. How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)
. Name of Medication
. How long have you been using this?
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- What is your doctor’s action plan for treating you?
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It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have areI’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?
Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.Specific comments :
Take a look at Sleep
There is a lot of good information there.Personal Opinion, not medical advice :
I've had all types of beds, right now we have an adjustable bed. It was the best investment we could have made. There are so many companies that make them. Just go to one of the mattress stores and talk to them about it. One thing, Queen size adjustables aree one bed, so both people get the same adjustment. The King size is really two beds, so each person can adjust it to the way they want.
--- Ron DiLauro, Spine-Health System Moderator : 07/28/15 17:22 est