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9yrs post ACDF

Hi Everybody,
I had a C-4,5,6 ACDF done in 2006.

Nothing post op was unusual.

Things going great the last 9 years... but occasional (only 1/2 dozen times a year) burning sensation between the shoulder blades (which pre-op was my first indicator of a problem).

These "burning sensations" go away almost immediately.

Over the past few years, I've experienced continuous numbness on and off in both hands (usually lasted for a month or two).

Had a cervical MRI done...some changes, but minor.

Had nerve study done.... nothing

have many sleep issues... sleep apnea, narcolepsy, dream immediately upon falling asleep..takes less than a minute to fall asleep

Last two years have had some crazy neuro problems Inca: blackout while driving, taking 5 seconds to remember president of U.S., wearing 2 diff shoes (not on purpose ;o), just yesterday, driving manual transmission car (have done so most of my 34yrs of driving) had high heels on (unusual for me..wear maybe once in 3 mos) backed out of driveway (Slight hill) in neutral,, had right foot on clutch, tried to break, just pushed clutch in further..increasing speed (whole time thinking right foot was on brake) straightened car out and rolled down hill with clutch to floor (thinking I was using brake).. car picked up speed as I approached intersection..i realized I was going to have to make my turn (either left or right) blindly..no line of sight at left onto a state highway.. I panicked,, heart was racing..thank god no oncoming traffic!

Last two jobs I've had low to middle level jobs..had extreme difficulties learning, many errors... got quite a few "warnings" from superiors.

I have over 20 years in Operations w college degree in management.. I'm so frustrated

had neuro-psych testing..nothing unusual

docs said symptoms were sleep depreciation related

am bipolar..had sec rounds of ECT in early 2000's

on a lot of meds..doc just halved my lithium script (gradually).. improved a 24/7 tremor and lots of involuntary movement

family history of Parkinson's (grandfather)

just did 24 hers in two days on a production floor-printing plant..after 2 days..could hardly walk..lower back issues and insides of both ankles

now I'm experiencing almost constant "pins and needles" (not numbness or tingling) in both hands whether at rest or in motion.

I'm so tired of all of this plus I've gained A LOT of weight (30 lbs over 4 yrs-I'm 5 FT 1 and now weigh 185lbs !!)

Does anyone have any questions/comments.

I hate being like this..i almost feel like the old "me" has disappeared

thanks for taking the time to read all this


  • SavageSavage United StatesPosts: 5,476
    edited 09/19/2015 - 8:16 PM
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    I'm adding Welcome link, as I see you joined in 2012. Since this is your second post, many things have been updated here!
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  • SavageSavage United StatesPosts: 5,476
    Sounds like you have been going through quite a lot!

    I was wondering, when you say .....last two years you've had black outs while driving, and also, unexpected difficulty driving with clutch, since you are experienced with that kind of vehicle.....
    Are you saying this has happened two years ago? Or has been going on for past two years?

    It definitely sounds like you have been tested for your symptoms, but I'm curious if there have been follow up testing?
    More current testing to see if things have changed?
    For example, have you had a recent sleep study?

    That sleep deprivation can be horrible! I was wide eyed, wild eyed...irritable, hypervigilant ....just desperate for sleep.
    I have some other issues in addition to the spinal issues, also.

    I, too, had experienced blackouts while driving. That in part led me to different testing.

    With all my testing and different issues, years ago, after my neuro psych testing, doctors strongly suggested I wear a medi alert , and I do wear it, stating I'm memory impaired.
    When doctors have evaluated me, they say I'm a terrible historian about my own issues, not to mention, I too did poorly with the testing.

    All that to say, you are not alone!
    Your frustration is understood, well, by me, and I'm sure many others.
    It is not easy to get to the source of the problem....trial and to try again.

    Spine-Health Moderator
    Please read my medical history at: Medical History

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