I just had my SCS implanted on 6/18/15. So far my permanent SCS experience has not been quite the same as my trial, which was stellar. My diagnosis is RSD/CRPS of the LEFT upper extremity, but it has spread across my upper back/shoulder blades and down my right arm as well.
During my trial I had a percutaneous lead placed in my neck, specifically all the way to C2 and sitting just to the left of midline. For my permanent SCS, a 16 electrode paddle lead was placed by laminectomy instead. I also have PNFS in my shoulder blades as well.
After my surgery it took several weeks to months and multiple reprogramming attempts in order for me to start feeling the stimulation in my left arm. I could always feel in in my right arm. The only way I can feel it in my left arm though is if I have my head turned 90 degrees to the left, I do not feel stimulation when my head is held straight ahead.
On post-op X-ray about a month after the surgery the paddle lead shows up sitting to the right of midline.
I'm now being told that paddle leads are NOT supposed to be used in Cervical epidural spaces because the risk of paralysis is too great, so revision is not an option and even if I wanted it removed, no one would do that either.
Does anyone else have paddle leads in their necks? If the lead was placed to the right of midline and my pain coverage was to the left of midline, will the stimulation eventually spread over that area?
Trying to make lemonade out of lemons over here......
Thank you in advance.Duplicate post please follow link
Liz -Spine-health Moderator